Welcome to DownSyndrome.com
Thu, 18/12/08 – 20:04 | 30 Comments

Thank you for visiting our Social Network!

We are thrilled you stopped by and we would love for you to join us. DownSyndrome.com is a social network that has been created for anyone that is interested in the sharing, learning, caring, discussing, anything about the condition called down syndrome. The goal of this site is to provide an intuitive and stimulating environment to help better understand and interact with parents, family, friends, care givers, educators and individuals. This site has the unique capability of bringing people together from all over the world. Our members come from Pakistan, Russia, India, Canada, the United States, etc.

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Articles by Justin Jilg

An open letter to my friends and colleagues
Saturday, 6 Mar, 2010 – 20:16 | No Comment

I challenge all of you to send a version of letter below to your HR departments, executives, organizational leadership, schools administrators, business that you work with, friends, family, etc.
The word “retarded” is being used more …

Teddy is 5 today
Sunday, 21 Feb, 2010 – 10:27 | One Comment
Teddy is 5 today

Happy Birthday my beautiful baby boy! Mom, Dad, Cooper, and Cade love you very much Teddy.
Happy Birthday Theodore – Our Gift from God

God gave a gift to the World when you were born. A son …

A Community Wrapped in an Afghan
Wednesday, 25 Nov, 2009 – 14:13 | 2 Comments
A Community Wrapped in an Afghan

The T21 Traveling Afghan Project – One blanket. Fifty US States. Many countries. Hundreds of families. One common thread!

Our family lives in Mesa, Arizona which is actually a massive suburb of Phoenix. The greater Phoenix metro area is a very interesting place not only because of its vastness of space and its incredibly large population but also because within this sea of people, it is still very difficult to be a part of a community.

I have always longed for the small town life where everyone knows who I am and more importantly everyone knows and loves my son Teddy. It just seems like it would be simpler and safer. So, in my attempt to build out a community here at DownSyndrome.com, I was introduced to CJ and her T21 Traveling Afghan Project.

Long Island Buddy Walk – Alexander’s Angels – Down Syndrome Research and Treatment Foundation
Friday, 13 Nov, 2009 – 20:21 | One Comment
Long Island Buddy Walk – Alexander’s Angels – Down Syndrome Research and Treatment Foundation

Let’s welcome the latest addition to the DownSyndrome.com team, Laura Suer. Laura has accepted a position as a participating volunteer and editorial staff member who will focus on partner outreach and strategy. She has been active on the site since its inception blogging at the URL tri21.downsyndrome.com. One of Laura’s first coups (I’m sure one of many) is to establish a relationship with Alexander’s Angels who runs the Long Island Buddy Walk and has a great future of providing much needed services to the constituents of Long Island.

Thank you Laura for bridging the relationship with such a wonderful organization. If you live in the Long Island area or if you have the inclination to help their wonderful support group, please consider providing assistance in the form of either volunteerism or financial support. Additionally, the Down Syndrome Research and Treatment Fund has an online store that further supports important DS research that hopefully will benefit all of our loved ones in the future. Support for DSRTF can be in the form of purchasing items from the Down Syndrome Store.

Welcome Laura Suer
Thursday, 12 Nov, 2009 – 20:58 | One Comment
Welcome Laura Suer

Let’s welcome the latest addition to the DownSyndrome.com team… Laura Suer has accepted a position as a participating volunteer and editorial staff member who will focus on partner outreach and strategy. She has been active on the site since its inception; blogging at the URL tri21.downsyndrome.com.

One of Laura’s many gifts, aside from tirelessly making relationships, is her wonderful ability to convey her experiences of being a parent to Donna and their families journey through the world of down syndrome discovery.

Thank you Laura for sharing and we can’t wait to see what you do next!!!

Extraordinary Talent – Bernadette Resha
Sunday, 8 Nov, 2009 – 19:27 | One Comment
Extraordinary Talent – Bernadette Resha

It is rare to find artwork that touches your soul and reaches emotions that remind you of the beautiful nature of humanity. It is even rare to find out that the artwork that has moved you has been created by a woman who happens to also have down syndrome. In doing research to find the wealth of accomplishments that have been attained by these special individuals, I ran across a woman who has the extraordinary gift of being a wonderful artist who’s work transcends and condition she may have and reaches levels of talent that many other artists should strive to accomplish.

The woman’s name is Bernadette Resha (bio below) and I think she further exemplifies that our children, family, and friends have boundless potential.

Share something special
Sunday, 1 Nov, 2009 – 10:25 | 2 Comments
Share something special

This website is for you and we want your story, videos, and pictures on the front page. This is a place to share, ask questions, make friendships and sometimes to vent and cry. More than …

Unexpected – Kim Johnson from “Dancing with the Stars”
Tuesday, 27 Oct, 2009 – 19:54 | One Comment
Unexpected – Kim Johnson from “Dancing with the Stars”

I just had the great experience of stumbling on the show “Dancing with the Stars” — my wife watches religiously but I typically only peak my head in when I’m not doing something more interesting .. like cleaning the garage ;) … Anyway, to my great surprise the dancer Kim Johnson (blonde bombshell) and Donny Osmond (her partner) had their little pre-dance segment where the show what their week was like in preparation for their big moment. During the segment, my eyes lit up and I began to smile when I realized that Kim frequently teaches to a group of very talented dancers who happen to also have down syndrome. Not only was I blown away at what a wonderful person she turns out to be but also the amazing talent that her students have, I should only hope that I could dance that well

Thank you so much Kim not only for touching the lives of your students but also touching the lives of the millions of people that are now more educated because of you!

Featured Blogs – The Ordinary Life of an Extraordinary Girl
Saturday, 24 Oct, 2009 – 0:48 | 5 Comments
Featured Blogs – The Ordinary Life of an Extraordinary Girl

I finally did it — I hid the gross, disgusting, ugly ,worn-out, fake crocs that Alex has been wearing every day for 2 1/2 years. It took a lot of guts – but I am proud of myself (at least for now).

When my kids were little, I thought it was sort of cute if they wanted to wear the same pair of jeans or shirt for more than two days in a row. However, Alex is 16 and these dreadful blue shoes have got to go. She should not have even worn them for two weeks in a row.

Many people I know with down syndrome have flat, wide feet. I am not sure exactly why that is – but as a result Alex has a funny step and walks with her feet pointed outwards. As with everything in her life, Alex has learned to compensate, and walking or even running – as evidenced by the fact we are going to participate in track and field at the National Olympic Games – is not a problem for her…

My Son Teddy
Thursday, 22 Oct, 2009 – 20:02 | 57 Comments
My Son Teddy

Hello everyone..I wanted to post a video of my son Teddy. It has a song that I love that makes me tear up every time. I wanted to kick this multimedia experience off by posting something of my own. I absolutely encourage you all to post your own pictures and videos. As the site grows it will become easier. Please enjoy .. :)