Welcome to DownSyndrome.com
Thu, 18/12/08 – 20:04 | 30 Comments

Thank you for visiting our Social Network!

We are thrilled you stopped by and we would love for you to join us. DownSyndrome.com is a social network that has been created for anyone that is interested in the sharing, learning, caring, discussing, anything about the condition called down syndrome. The goal of this site is to provide an intuitive and stimulating environment to help better understand and interact with parents, family, friends, care givers, educators and individuals. This site has the unique capability of bringing people together from all over the world. Our members come from Pakistan, Russia, India, Canada, the United States, etc.

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That which we do today will echo throughout the generations to come
Tuesday, 9 Mar, 2010 – 10:30 | 3 Comments
That which we do today will echo throughout the generations to come

One of our wonderful visitors wrote in asking for activities to do with a group of people to help them get an understanding of what it might be like to have Down syndrome. The activities included are great for parents to present to their child’s class, a teacher to present to their class, or even a student to present to their class as a project. We appreciate this educator’s commitment to making the world a better and more accommodating. Thank you for everything that you do.

An open letter to my friends and colleagues
Saturday, 6 Mar, 2010 – 20:16 | No Comment

I challenge all of you to send a version of letter below to your HR departments, executives, organizational leadership, schools administrators, business that you work with, friends, family, etc.
The word “retarded” is being used more …

Teddy is 5 today
Sunday, 21 Feb, 2010 – 10:27 | One Comment
Teddy is 5 today

Happy Birthday my beautiful baby boy! Mom, Dad, Cooper, and Cade love you very much Teddy.
Happy Birthday Theodore – Our Gift from God

God gave a gift to the World when you were born. A son …

Welcome Laura Suer
Thursday, 12 Nov, 2009 – 20:58 | One Comment
Welcome Laura Suer

Let’s welcome the latest addition to the DownSyndrome.com team… Laura Suer has accepted a position as a participating volunteer and editorial staff member who will focus on partner outreach and strategy. She has been active on the site since its inception; blogging at the URL tri21.downsyndrome.com.

One of Laura’s many gifts, aside from tirelessly making relationships, is her wonderful ability to convey her experiences of being a parent to Donna and their families journey through the world of down syndrome discovery.

Thank you Laura for sharing and we can’t wait to see what you do next!!!

Extraordinary Talent – Bernadette Resha
Sunday, 8 Nov, 2009 – 19:27 | One Comment
Extraordinary Talent – Bernadette Resha

It is rare to find artwork that touches your soul and reaches emotions that remind you of the beautiful nature of humanity. It is even rare to find out that the artwork that has moved you has been created by a woman who happens to also have down syndrome. In doing research to find the wealth of accomplishments that have been attained by these special individuals, I ran across a woman who has the extraordinary gift of being a wonderful artist who’s work transcends and condition she may have and reaches levels of talent that many other artists should strive to accomplish.

The woman’s name is Bernadette Resha (bio below) and I think she further exemplifies that our children, family, and friends have boundless potential.

Unexpected – Kim Johnson from “Dancing with the Stars”
Tuesday, 27 Oct, 2009 – 19:54 | One Comment
Unexpected – Kim Johnson from “Dancing with the Stars”

I just had the great experience of stumbling on the show “Dancing with the Stars” — my wife watches religiously but I typically only peak my head in when I’m not doing something more interesting .. like cleaning the garage ;) … Anyway, to my great surprise the dancer Kim Johnson (blonde bombshell) and Donny Osmond (her partner) had their little pre-dance segment where the show what their week was like in preparation for their big moment. During the segment, my eyes lit up and I began to smile when I realized that Kim frequently teaches to a group of very talented dancers who happen to also have down syndrome. Not only was I blown away at what a wonderful person she turns out to be but also the amazing talent that her students have, I should only hope that I could dance that well

Thank you so much Kim not only for touching the lives of your students but also touching the lives of the millions of people that are now more educated because of you!

ALL HANDS ON DECK!!!!
Sunday, 27 Sep, 2009 – 11:03 | 5 Comments
ALL HANDS ON DECK!!!!

Looking for any suggestions that may work to save my son.
He is 3 months old currently in ICU. He can not put on weight due to his av canel defect and is at risk for heart surgery due to his nutritional state. We currently have him on 27 cal formula with oil through a feeding tube directly to his intestine. He is batteling a infection from his central line or the vent we are not sure. My team of physicans don’t know what more to try to make him stronger. I met with one dr today that says he needs his heart repaired asap but the risks are to great that we might lose him. I can’t bear the thought of that, Now I am fighting for my son, I have to save him some how but I don’t know where to turn too? PLEASE If anyone can help me I would be forever greatful.

New Photo Albums … Yea!
Sunday, 16 Aug, 2009 – 16:15 | One Comment
New Photo Albums … Yea!

Hello all,

I just added the ability for everyone to upload their own photos to their own member pages. Just go to the top navigation bar (above) and move your mouse over “My Account”. You will then see an option called “Album” ..

Once you click on Album, choose “Upload Picture”. Fill in a name and a description and choose “browse” and then click submit.

Thats it!

After you are done tell everyone that you have new pictures by either writing on your “Wire” or by adding an entry to the new “Buddy Pictures” Group.

I cant wait to see all the great photos. I just uploaded one of Teddy. Please enjoy. (See Teddy Here).

REPAIR OF CARDIAC CONDITION A SUCCESS !!!!!!
Sunday, 19 Jul, 2009 – 20:53 | 4 Comments
REPAIR OF CARDIAC CONDITION A SUCCESS !!!!!!

Donna Sauer and Mom after a cardiac procedure
Go DONNA GO…
Our friend Laura Sauer just posted on her blog that her daughter came through her PDA with flying colors. I know many of you were sending …

New Photos
Thursday, 5 Mar, 2009 – 22:07 | 2 Comments
New Photos

There are some wonderful new photos that have just been posted on the site. Thank you Jakey, Braiden, and Rosa for adding some light in our lives by sharing your wonderful pictures. To see more of these beautiful kiddos, click HERE

If you are interested in sharing either pictures or video, please see the instructions on the photos page and I will get them posted.