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	<title>DownSyndrome.com &#187; Articles</title>
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		<title>My son is SMART</title>
		<link>http://downsyndrome.com/my-son-is-smart/#utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=my-son-is-smart</link>
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		<pubDate>Sun, 11 Dec 2011 23:27:21 +0000</pubDate>
		<dc:creator>Justin Jilg</dc:creator>
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		<guid isPermaLink="false">http://downsyndrome.com/?p=3850</guid>
		<description><![CDATA[Raising a child with Down syndrome is a unique experience. The way they learn is unpredictable and children progress at their own pace. Kids with Down syndrome have abilities that are all over the map. Some will learn with their typical peer group until things start to slow down while other kiddos struggle for every new accomplishment and it takes them a little longer. Teddy is 6 years old now and is sort of in the middle. He is sharp as a tack but he has issues with socialization and also struggles when he needs to perform tasks that require him to focus for extended periods of time. He gets  tense and he needs to back off and take frequent breaks. Teddy has an uncanny ability to focus on TV shows. He can watch them over and over and he actually can recite the words to hundreds of episodes of Sesame Street, Curious George, Cat in the Hat, and Super Why verbatim, even the commercials. Not only does he know every word but he also can act out the mannerisms and do the physical movements like the actors. It is incredible. I know what you are thinking &#8212; too much time in front of the tube, but Teddy also gets a lot of outside play time, reading, playing with his brothers, therapies, homework, etc. I think he is well rounded. He calms down and feels more comfortable in his own skin when he is able to relax and watch his ...]]></description>
			<content:encoded><![CDATA[<p><img class="size-medium wp-image-3851 alignleft" style="margin: 5px;" title="IMG_0340" src="http://downsyndrome.com/files/2011/12/IMG_0340-300x261.jpg" alt="" width="300" height="261" />Raising a child with Down syndrome is a unique experience. The way they learn is unpredictable and children progress at their own pace. Kids with Down syndrome have abilities that are all over the map. Some will learn with their typical peer group until things start to slow down while other kiddos struggle for every new accomplishment and it takes them a little longer.</p>
<p>Teddy is 6 years old now and is sort of in the middle. He is sharp as a tack but he has issues with socialization and also struggles when he needs to perform tasks that require him to focus for extended periods of time. He gets  tense and he needs to back off and take frequent breaks.</p>
<p>Teddy has an uncanny ability to focus on TV shows. He can watch them over and over and he actually can recite the words to hundreds of episodes of Sesame Street, Curious George, Cat in the Hat, and Super Why verbatim, even the commercials.</p>
<p>Not only does he know every word but he also can act out the mannerisms and do the physical movements like the actors. It is incredible. I know what you are thinking &#8212; too much time in front of the tube, but Teddy also gets a lot of outside play time, reading, playing with his brothers, therapies, homework, etc. I think he is well rounded. He calms down and feels more comfortable in his own skin when he is able to relax and watch his shows.</p>
<p>One of the great byproducts of him watching these educational shows are the fantastic lessons they teach. Teddy has great abilities with math and alphabet thanks to Sesame Street and he is picking up other tidbits from Curious George and Cat in the Hat. But recently he has begun to watch <a title="Super Why" href="http://pbskids.org/superwhy/">Super Why</a>. Super Why is heavy on spelling and does a really good job of relaying information in a very intuitive way.</p>
<p>The other <img class="size-medium wp-image-3853 alignleft" style="margin: 5px;" title="Teddy Spelling Smart" src="http://downsyndrome.com/files/2011/12/IMG_0343-1-300x223.jpg" alt="" width="300" height="223" />evening I was on the computer and Rebecca was fixing dinner. Teddy ran into the room super excited with his magnetic writing pad in his hands and he looked up at me and said &#8221; Dad, Dad, Dad &#8212; I&#8217;m SMART!&#8221; then he held up his writing pad and there it was; the word <span style="text-decoration: underline;"><strong>SMART</strong></span> spelled out perfectly and legibly.</p>
<p>I could not believe my eyes&#8230;This just came out of the blue and although I knew he was able to write words like Cat and Pig with some oversight. I have never seen him do anything like this before. He then started shaking his hands and smiling and yelling and jumping. I had tears come to my eyes; it was so special.</p>
<p>Then something really incredible happened. He sat down on the floor, erased his board and wrote it again, and then again, and then again. Then &#8230; he erased the board and wrote the word <span style="text-decoration: underline;"><strong>SPELL</strong></span>. The &#8230; he erased the board and wrote the word <span style="text-decoration: underline;"><strong>MUSIC</strong></span> &#8230; Then &#8230; he erased the word and wrote the word <span style="text-decoration: underline;"><strong>BALL</strong></span>.</p>
<p>It was a magical experience that I will never forget. One thing this reinforces for me is that the capabilities of our kiddos are limitless. They will keep learning throughout their lives and they will reach heights that we never dreamed for them.</p>
<p><img class="size-medium wp-image-3852 alignleft" style="margin: 5px;" title="IMG_0357" src="http://downsyndrome.com/files/2011/12/IMG_0357-300x275.jpg" alt="" width="300" height="275" />I have goals for Teddy that I hope he will also have. I want him to go to college, drive, have a partner or wife and most importantly is happy and treated well in his community.</p>
<p>Everyone with a child with Down syndrome, please do me a favor. Go over to your kiddo after you read this post and give them a huge hug and kiss and tell them that you are proud of them and that they can be anything they want to be in this world.</p>
<p>They are <span style="text-decoration: underline;"><strong>SMART!</strong></span></p>
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		<title>Happy Halloween 2011</title>
		<link>http://downsyndrome.com/happy-halloween-2011/#utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=happy-halloween-2011</link>
		<comments>http://downsyndrome.com/happy-halloween-2011/#comments</comments>
		<pubDate>Tue, 01 Nov 2011 03:37:45 +0000</pubDate>
		<dc:creator>Justin Jilg</dc:creator>
				<category><![CDATA[Articles]]></category>
		<category><![CDATA[Blog]]></category>

		<guid isPermaLink="false">http://downsyndrome.com/?p=2155</guid>
		<description><![CDATA[Happy Halloween Friends! Love Rebecca, Teddy, Cooper, Cade, and Justin]]></description>
			<content:encoded><![CDATA[<p><a href="http://downsyndrome.com/files/2011/10/family_halloween_2011.jpg"><img class="alignnone size-large wp-image-2157" title="family_halloween_2011" src="http://downsyndrome.com/files/2011/10/family_halloween_2011-1024x768.jpg" alt="" width="522" height="382" /></a></p>
<p>Happy Halloween Friends!</p>
<p>Love Rebecca, Teddy, Cooper, Cade, and Justin</p>
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		<title>Amazing Brie</title>
		<link>http://downsyndrome.com/amazing-brie/#utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=amazing-brie</link>
		<comments>http://downsyndrome.com/amazing-brie/#comments</comments>
		<pubDate>Thu, 06 Oct 2011 23:33:53 +0000</pubDate>
		<dc:creator>Justin Jilg</dc:creator>
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		<guid isPermaLink="false">http://downsyndrome.com/?p=2024</guid>
		<description><![CDATA[Shelly Giard, one of our wonderful, long-time members of Downsyndrome.com just created a YouTube site for her daughter Brie in order to raise awareness for the upcoming Down syndrome month. She wants to share her wonderful little girl with the World and of course spread the joy she receives every day from her little angel. You can visit her YouTube channel here and add her as a friend and see her profile on Downsyndrome.com here Shelly has also writes a Downsyndrome.com blog that is fantastic &#8230; &#8220;Abrielle (Brie) has traveled leaps and bounds in the past year as I am happy to share the highlights. She is quickly approaching 2, which is surreal to me as I recall the very day I found out about this special blessing that I would have the honor to raise. My journey thus far has not been nearly as difficult as many stories I read, however the message is still the same. I, like all of you… have been chosen by God to love, embrace and mold a special child. It is up to me and those that are part of her life to encourage, uplift and teach her that she can do anything she puts her mind to. I have become her cheerleader… as I am to all of my children; but I would be lying if I said my experience with her was not different. Abrielle is different; she has more patience and less frustration than I have ever had, she smiles ...]]></description>
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<p>Shelly Giard, one of our wonderful, long-time members of Downsyndrome.com just created a YouTube site for her daughter Brie in order to raise awareness for the upcoming Down syndrome month. She wants to share her wonderful little girl with the World and of course spread the joy she receives every day from her little angel. You can visit her YouTube channel <a title="My Amazing Brie" href="http://www.youtube.com/user/MyAmazingBrie"><strong>here</strong></a> and add her as a friend and see her profile on Downsyndrome.com <strong><a title="Shelly Talbott" href="http://downsyndrome.com/members/shelleygiardtalbott/">here</a></strong></p>
<p>Shelly has also writes a Downsyndrome.com blog that is fantastic &#8230;</p>
<blockquote>
<p style="padding-left: 30px;"><em>&#8220;Abrielle (Brie) has traveled leaps and bounds in the past year as I am happy to share the highlights. She is quickly approaching 2, which is surreal to me as I recall the very day I found out about this special blessing that I would have the honor to raise. My journey thus far has not been nearly as difficult as many stories I read, however the message is still the same. I, like all of you… have been chosen by God to love, embrace and mold a special child. It is up to me and those that are part of her life to encourage, uplift and teach her that she can do anything she puts her mind to. I have become her cheerleader… as I am to all of my children; but I would be lying if I said my experience with her was not different. Abrielle is different; she has more patience and less frustration than I have ever had, she smiles even when she should frown, she laughs at the simplest things and she never EVER gives up on a task… her determination and finesse truly amazes me. Want to know the most extraordinary thing about all of these qualities that she possesses? She has rubbed all of these qualities off onto to me and I find that I am more patient, happier even when my day is not so great and my already determined nature has been strengthened by her existence&#8230;..&#8221;</em></p>
</blockquote>
<p>You can visit here site <strong><a title="Shelley Giard Talbott" href="http://shelleygiardtalbott.downsyndrome.com/">here</a></strong>.</p>
<p>If you are interested in writing your own Downsyndrome.com blog, feel free to message me and we&#8217;ll get you all setup. Also, if you would like to register for Downsyndrome.com visit this <strong><a href="http://downsyndrome.com/register">link</a></strong></p>
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		<title>Dear Jennifer &#8230;</title>
		<link>http://downsyndrome.com/dear-jennifer/#utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=dear-jennifer</link>
		<comments>http://downsyndrome.com/dear-jennifer/#comments</comments>
		<pubDate>Fri, 23 Sep 2011 22:34:24 +0000</pubDate>
		<dc:creator>Justin Jilg</dc:creator>
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		<guid isPermaLink="false">http://downsyndrome.com/?p=1930</guid>
		<description><![CDATA[One of the unpleasant things that come with running a website like this is getting comments from “devastated” parents who just found out that they are going to have a child with Down syndrome like this one below. It pains me more than anything to think of the agony people are going through and all I want to do is reach out an rip that pain right out of their body and transport them 2 years into the future &#8212; at which time they are going to feel blessed by their new child and wonder why they ever felt so distressed. Unfortunately life doesn&#8217;t work that way and many of these parents are going to have to go through the inevitable strain of being scared and embarrassed and unsure of themselves. Many people reach out to me and hope that I can say the right thing or tell them the right story or point them in the right direction to an article that will make it all ok but the only thing I can confidently say is that time is what will make it better and those feelings you have today will dissipate. I want you and your husband to know everything is going to be alright. People are nice and generous with our children now, schools are accommodating, people will stare at you but those stares will also be accompanied with a smile and heartfelt appreciation of your sacrifice and obvious love you feel for your child. When you ...]]></description>
			<content:encoded><![CDATA[<p>One of the unpleasant things that come with running a website like this is getting comments from “devastated” parents who just found out that they are going to have a child with Down syndrome like this one below.</p>
<hr>
<div class="messageBox quote"><div class="item-content"><span class="quote_text">I just found out the new today I am carrying a baby with DS. I don’t even want to say it out loud. I am 18 weeks pregnant, I have a 10 year old son , an 11 year old step son and a 9 year old step daughter. We feel devastated. My husband was so afraid of getting pregnant because he thought something would be wrong. He has been happy about the baby recently. Now he feels that his life is over. I am being honest. I do have a portion of that same feeling. I don’t know if he can cope with it. We are Christians but are human too and are suffering. I need help with this. I read the other messages and see how you say you are happy with your baby/child, I just don’t know how to deal with this. I am so sad. What do I do now? I have disappointed my family. You may say it is not my fault but still how can I deal with it?</span><cite class="quote_author">- Anon</cite></div></div>
<hr>
<p>It pains me more than anything to think of the agony people are going through and all I want to do is reach out an rip that pain right out of their body and transport them 2 years into the future &#8212; at which time they are going to feel blessed by their new child and wonder why they ever felt so distressed.</p>
<p>Unfortunately life doesn&#8217;t work that way and many of these parents are going to have to go through the inevitable strain of being scared and embarrassed and unsure of themselves.</p>
<p>Many people reach out to me and hope that I can say the right thing or tell them the right story or point them in the right direction to an article that will make it all ok but the only thing I can confidently say is that time is what will make it better and those feelings you have today will dissipate. I want you and your husband to know everything is going to be alright. People are nice and generous with our children now, schools are accommodating, people will stare at you but those stares will also be accompanied with a smile and heartfelt appreciation of your sacrifice and obvious love you feel for your child.</p>
<p>When you are ready enough to begin to let more people know about your situation, it is a good idea to get in touch with your local support groups &#8212; some can be found here and there are many more out there that are ready to help you and your husband through this difficult time as well as in the future. You will find parents that have gone through the exact same thing you are going through and you will meet their wonderful kids and you will start to feel better about the promise that your family will have in the future.</p>
<p>On this site there are numerous member created blogs that recount their situations and how they were able to get through this tough time. Many others can also be found on-line. Also, some of the major support organizations have expectant parenting packets that will also help you better understand what to think about and provide some suggestions about what to do going forward.</p>
<p>I&#8217;ve stopped paying attention to how many readers come to this site due to it becoming more about numbers than about people &#8212; So, I&#8217;m not sure how many readers this site has anymore but if you do read this article, please send your best wishes in the comments below and let her know you are wishing the best for her and it will be alright.</p>
<p>Thank you all!</p>
<p>Justin</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
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		<title>Another Teddy Video</title>
		<link>http://downsyndrome.com/another-teddy-video/#utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=another-teddy-video</link>
		<comments>http://downsyndrome.com/another-teddy-video/#comments</comments>
		<pubDate>Fri, 23 Sep 2011 20:47:32 +0000</pubDate>
		<dc:creator>Justin Jilg</dc:creator>
				<category><![CDATA[Articles]]></category>
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		<guid isPermaLink="false">http://downsyndrome.com/?p=1917</guid>
		<description><![CDATA[As many of you know I’m a sucker for videos of my kids accompanied by beautiful music. My first rudimentary attempt was very well received with amazing comments for people all over the world. The video reminds me of work done circa 1950s. The is called “My Son Teddy” and can be found  here. So, atlast I am going to post an updated video that is a simple montage of some of my favorite pictures of Teddy and the family. It is a little less entertaining than the first but I think it brings Teddy adoring fans up-to-date so they can see how the little tike has grown over the years. Click on the images below to view the videos Thank you to Lady Gaga for plying such wonderful music. Please enjoy.]]></description>
			<content:encoded><![CDATA[<p>As many of you know I’m a sucker for videos of my kids accompanied by beautiful music. My first rudimentary attempt was very well received with amazing comments for people all over the world. The video reminds me of work done circa 1950s. The is called “My Son Teddy” and can be found  <a title="My Son Teddy" href="http://downsyndrome.com/my-son-teddy">here</a>. So, atlast I am going to post an updated video that is a simple montage of some of my favorite pictures of Teddy and the family. It is a little less entertaining than the first but I think it brings Teddy adoring fans up-to-date so they can see how the little tike has grown over the years.</p>
<h3><span style="color: #ff0000;">Click on the images below to view the videos</span></h3>
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								<h2 class="entry-title"><a href="http://downsyndrome.com/teddy-videos/t-video-1/" rel="bookmark" title="Permalink to Born this Way">Born this Way</a></h2>
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								<h2 class="entry-title"><a href="http://downsyndrome.com/teddy-videos/t-video-2/" rel="bookmark" title="Permalink to My Son Teddy">My Son Teddy</a></h2>
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<p>Thank you to <em>Lady Gaga</em> for plying such wonderful music. Please enjoy.</p>
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