Comments for DownSyndrome.com http://downsyndrome.com Just another weblog Tue, 09 Mar 2010 15:14:26 -0800 http://wordpress.org/?v=2.8.6 hourly 1 Comment on My Son Teddy by Mari Powell http://downsyndrome.com/my-son-teddy/comment-page-1/#comment-14914 Mari Powell Tue, 09 Mar 2010 15:14:26 +0000 http://downsyndrome.com/?p=253#comment-14914 What a delightful video. I visited the website as I have Special Needs qualifications and many years experience and am hoping to transfer across from my present employment to working as a tutor of a young ds child in the emirates where I presently reside. Enjoy Teddy he is indeed a beautiful little boy. I have two relatives with down syndrome children, one already in adulthood and they are much loved and precious. What a delightful video. I visited the website as I have Special Needs qualifications and many years experience and am hoping to transfer across from my present employment to working as a tutor of a young ds child in the emirates where I presently reside. Enjoy Teddy he is indeed a beautiful little boy. I have two relatives with down syndrome children, one already in adulthood and they are much loved and precious.

]]> Comment on Down Syndrome Signs and Symptoms by Justin http://downsyndrome.com/down-syndrome-signs-and-symptoms/comment-page-1/#comment-14913 Justin Mon, 08 Mar 2010 20:59:23 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=20#comment-14913 Thank you! My only suggestion to you is be prepared to have a wonderful little baby that will keep you awake...Get some sleep as often as you can ;) Your baby is going to be great! You are going to develop a bond with her that I can't even explain right now. Something will change in you and your husband that will be magical. Just as any new parent, your view of the World will become clearer in a way that you can't never understand right now. It is impossible for me to relate what it will be like for you but I promise life will be better for you once your little baby comes. I tend to stay away from the various platitudes that are often used but the one that I always think is a truism is that you have been given an opportunity and a gift and once you have a chance to experience that gift, the pain will be a distant memory. Please keep in touch. I look forward to getting to know you and your family more. Sincerely, Justin Thank you! My only suggestion to you is be prepared to have a wonderful little baby that will keep you awake…Get some sleep as often as you can ;)

Your baby is going to be great! You are going to develop a bond with her that I can’t even explain right now. Something will change in you and your husband that will be magical. Just as any new parent, your view of the World will become clearer in a way that you can’t never understand right now.

It is impossible for me to relate what it will be like for you but I promise life will be better for you once your little baby comes. I tend to stay away from the various platitudes that are often used but the one that I always think is a truism is that you have been given an opportunity and a gift and once you have a chance to experience that gift, the pain will be a distant memory.

Please keep in touch. I look forward to getting to know you and your family more.

Sincerely,
Justin

]]> Comment on Down Syndrome Signs and Symptoms by Harvey http://downsyndrome.com/down-syndrome-signs-and-symptoms/comment-page-1/#comment-14912 Harvey Mon, 08 Mar 2010 00:52:25 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=20#comment-14912 Hey Justin! I think this website is wonderful. You have done a great job. I did post on the expecting page but I wanted to do it here also. At 17 weeks my ob noticed that our daughter may have a heart defect, at that time the quad blood test they do did come back negative at 20 weeks we found out that yes in fact she does have a av canal heart defect, at 21 weeks we did the amino and at 22 weeks we did find out that all 4 groups of cells they tested did grow a 3rd 21st. I do have to say I was divested, I know you know all the emotions of what you go though. I blamed myself and wanted to know what I could have done to cause this, I had done everything 100% by the book. I learned there wasn’t anything I did to cause this, it is just something that happens. I was sitting in the doctors off crying and the genetic consular came in and handed my husband and I two books, on the cover of both of those books was the most beautiful babies with down syndrome. I remember crying and looking at my husband and saying they are beautiful. We are not at week 26!! We are taking everything one day at a time and learning as much as we can about down syndrome and av canal as we can before she gets here. We have also looked into places to have her heart surgery. do you have any suggestion of the best way to be prepared?? Hey Justin! I think this website is wonderful. You have done a great job. I did post on the expecting page but I wanted to do it here also. At 17 weeks my ob noticed that our daughter may have a heart defect, at that time the quad blood test they do did come back negative at 20 weeks we found out that yes in fact she does have a av canal heart defect, at 21 weeks we did the amino and at 22 weeks we did find out that all 4 groups of cells they tested did grow a 3rd 21st. I do have to say I was divested, I know you know all the emotions of what you go though. I blamed myself and wanted to know what I could have done to cause this, I had done everything 100% by the book. I learned there wasn’t anything I did to cause this, it is just something that happens. I was sitting in the doctors off crying and the genetic consular came in and handed my husband and I two books, on the cover of both of those books was the most beautiful babies with down syndrome. I remember crying and looking at my husband and saying they are beautiful. We are not at week 26!! We are taking everything one day at a time and learning as much as we can about down syndrome and av canal as we can before she gets here. We have also looked into places to have her heart surgery. do you have any suggestion of the best way to be prepared??

]]> Comment on History of Down Syndrome and Useful Information by Justin http://downsyndrome.com/history-of-down-syndrome/comment-page-1/#comment-14909 Justin Tue, 02 Mar 2010 07:17:54 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=10#comment-14909 Taylor, it is wonderful to meet you. welcome to the site...I look forward to getting to know you more. Justin Taylor, it is wonderful to meet you. welcome to the site…I look forward to getting to know you more.

Justin

]]> Comment on Down Syndrome Signs and Symptoms by Justin http://downsyndrome.com/down-syndrome-signs-and-symptoms/comment-page-1/#comment-14908 Justin Tue, 02 Mar 2010 07:17:19 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=20#comment-14908 Hi Shawnda...My advice to everyone is always just to love your baby little girl with all your heart and the rest will work itself out and be wonderful in a way that you can't understand right now...We have all had the exact same feelings as you and one thing that I've found to be universal among us is that we inevitably all feel that our lives change and our experiences become more meaningful and our perception of the World a little clearer. Feel free to email me if you have any questions or just want to talk. We wish you the best with your baby girl. Life is so interesting .. sometimes we can't explain why things happen but more often than not, they seem to happen to people that can handle them. Take care, Justin Hi Shawnda…My advice to everyone is always just to love your baby little girl with all your heart and the rest will work itself out and be wonderful in a way that you can’t understand right now…We have all had the exact same feelings as you and one thing that I’ve found to be universal among us is that we inevitably all feel that our lives change and our experiences become more meaningful and our perception of the World a little clearer.

Feel free to email me if you have any questions or just want to talk. We wish you the best with your baby girl. Life is so interesting .. sometimes we can’t explain why things happen but more often than not, they seem to happen to people that can handle them.

Take care,
Justin

]]> Comment on History of Down Syndrome and Useful Information by taylor henrie http://downsyndrome.com/history-of-down-syndrome/comment-page-1/#comment-14907 taylor henrie Mon, 01 Mar 2010 21:11:28 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=10#comment-14907 hi my name is taylor dawn henrie and i have down syindrom and my faveritent is Acting and Dance hi my name is taylor dawn henrie and i have down syindrom and my faveritent is Acting and Dance

]]> Comment on Down Syndrome Signs and Symptoms by Shawnda http://downsyndrome.com/down-syndrome-signs-and-symptoms/comment-page-1/#comment-14906 Shawnda Sun, 28 Feb 2010 20:32:12 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=20#comment-14906 I'm seventeen, and I am five months pregnant just about with a baby girl.We got a call three days ago from my OB, and he said the blood test came back positive for down syndrome. Whether my baby has down syndrome or not, i'll love her with everything i have in me. I'm so scared, that I wont be able to give her what she needs. Any advice? I’m seventeen, and I am five months pregnant just about with a baby girl.We got a call three days ago from my OB, and he said the blood test came back positive for down syndrome. Whether my baby has down syndrome or not, i’ll love her with everything i have in me. I’m so scared, that I wont be able to give her what she needs. Any advice?

]]> Comment on That which we do today will echo throughout the generations to come by Jennifer McDowell http://downsyndrome.com/down-syndrome-education/comment-page-1/#comment-14905 Jennifer McDowell Thu, 25 Feb 2010 01:48:22 +0000 http://downsyndrome.com/?p=521#comment-14905 What a wonderful list of activities to show others what it feels like physically to have Down's. I am a writer,and the mother of a teen with Down's and people have asked me to try writing a book like "The Curious Incident of the Dog in the Night" from the POV of a person with Down's. I have found this incredibly difficult. But the physical realm is a good start in helping us all understand--thanks so much! Jennifer McDowell What a wonderful list of activities to show others what it feels like physically to have Down’s.
I am a writer,and the mother of a teen with Down’s and people have asked me to try writing a book like “The Curious Incident of the Dog in the Night” from the POV of a person with Down’s. I have found this incredibly difficult. But the physical realm is a good start in helping us all understand–thanks so much!

Jennifer McDowell

]]> Comment on What is Down Syndrome? by thumbsuptoupsyndrome http://downsyndrome.com/what-is-down-syndrome/comment-page-1/#comment-14903 thumbsuptoupsyndrome Wed, 24 Feb 2010 15:53:56 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=5#comment-14903 Encouraging all to give a "Thumbs UP to UP Syndrome." Hugs http://www.facebook.com/pages/David-Pearce-Down-Syndrome-Brother-of-Kevin-Pearce-1000000-Fan-Club/320349778530?v=wall&ref=mf Encouraging all to give a “Thumbs UP to UP Syndrome.”

Hugs

http://www.facebook.com/pages/David-Pearce-Down-Syndrome-Brother-of-Kevin-Pearce-1000000-Fan-Club/320349778530?v=wall&ref=mf

]]> Comment on Teddy is 5 today by Nora http://downsyndrome.com/teddy-is-5-today/comment-page-1/#comment-14902 Nora Tue, 23 Feb 2010 21:05:40 +0000 http://downsyndrome.com/?p=748#comment-14902 Hi Justin, Congratulations to Teddy and your family for this wonderful birthday!! I am new to this site. My nephew is 5 months old and has DS. His name is Santiago. He is a very healthy and happy baby. I love him so much that my heart hurts every time I see him. He is a special gift from God to us. I want to stay in touch and get all the help I can get to help my sister every way I can. The therapies have been a huge help, everytime he reaches a new milestone is a huge celebration!! Thank you so much! Nora Hi Justin,

Congratulations to Teddy and your family for this wonderful birthday!!

I am new to this site. My nephew is 5 months old and has DS. His name is Santiago. He is a very healthy and happy baby. I love him so much that my heart hurts every time I see him. He is a special gift from God to us.

I want to stay in touch and get all the help I can get to help my sister every way I can. The therapies have been a huge help, everytime he reaches a new milestone is a huge celebration!!

Thank you so much!

Nora

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