That which we do today will echo throughout the generations to come
This is an amazing guest post from a former educator and parent of a child with down syndrome….
Down syndrome education
Rebecca Frederick-Jilg
One of our wonderful visitors wrote in asking for activities to do with a group of people to help them get an understanding of what it might be like to have Down syndrome. The activities included are great for parents to present to their child’s class, a teacher to present to her/his class, or even a student to present to her/his class as a project. We appreciate this educator’s commitment to making the world a better and more accommodating. Thank you for everything that you do.
Hi,
I am currently a senior at Park University in Parkville, Missouri. I am majoring in Elementary Education and I am presently taking a course named, Exceptional Child. I have an assignment to do on Down Syndrome. I will be developing a better understanding of what it is and the ways in which a teacher can meet their needs in education. I was wondering if there was anyway for you to give me some suggestions on how to incorporate and accommodate to their needs in the classroom? One thing that I am really looking for is an activity that I could do in my class to show my peers and future teachers, what people diagnosed with Down Syndrome are feeling. I know this will be incredibly hard, but I would just like them to get a taste of it. This is why I am looking for someone with more knowledge about Down Syndrome. If you have any suggestions, I would greatly appreciate it.
Thank you for you time and I hope to hear from you soon,
Sydney
Many of these activities are geared for the physical aspect of Down syndrome. As we know, someone with Down syndrome usually has low muscle tone, which makes it difficult for gross motor and fine motor skills along with articulating speech. This can give us a better idea of the physical challenges of Down syndrome.
Supplies:
- Hand weights
- Ankle weights
- Large marshmallows
- Socks (ask the kids the day before to bring them in)
These activities can be done in small groups, rotating. You may also do it as a whole group if you can get enough weights for everyone. Ask your school’s physical education teacher for supplies. They may even want to help out.
Activities:
-Holding arms up for one-two minutes…one arm having a wrist weight on it
or holding a hand weight.
Compare and contrast the difference in the arms and how tired the arm with the weight feels. This is how someone’s body with Down syndrome feels.
-Hoping on one foot at a time, first one foot with an ankle weight on it and then the other without. Again compare and contrast the difference of how the legs feel. This could be how someone with Down syndrome feels when the run.
-Put ½ a large marshmallow up in the palette of the mouth then try telling each other what they had for breakfast. This gives a good understanding of how difficult it can be to speak clearly.
-Put socks on hands then attempt to tie shoes or play with some toys. This gives an idea of what fine motor difficulties are like. Try building a house out of playing cards. This seems like an impossible task. The important thing is that you tried. Just like it is important for a person with Down syndrome needs to try to do things. That person may just need to get help in different ways.
Also discuss how different people had different experiences because of the different tightness of the socks. It was easier for some people to tie their shoes than it was for others. This carries over for people with Down syndrome also. People with Down syndrome have all different levels of abilities. Some things are a lot harder for one person than it may be for another. Just like you and me.
Which carries over to one of the most important parts of the lesson. Discuss what the audience likes, such as pizza, music, dancing, and then talk about how people with Down syndrome like these things just the same. The point being made of how much you have in common.
To show off a little, you can have your guest star, the person with Down syndrome, show the audience how flexible he/she is. You will then be able to discuss how we all have strengths and something we can show do or show off.
Added extras:
Garth Brooks video ”Coming Out of the Fire” has a young man with Down syndrome running in a track meet with typical kids when everyone (except his mom) thought he should running in the Special Olympics. Talk about inclusion.
Talk about Dr. Down and how Down syndrome got its name.
Also attached are copies you can print out of a coloring book and an introduction book. These books helps explain Down syndrome and also introduce your child in a way that shows how much he/she is similar to the other children in the class. The coloring book is great to be used in class along with this lesson. The introduction book is great to be used for the teacher before school starts, and also with the whole class, if they are done ahead of time.
A wonderful book to reference is: Understanding How Children with Down Syndrome Learn Proven and Effective Techniques for Parents and Professionals by Susan J. Peoples
Additionally, one of the best workbooks that I’ve run across is a simple coloring book called, “What You Should Know About Down Syndrome” …
The authors of these books have given express consent that they should be used in any constructive way possible. Please feel free to use within your school project as well as in your classrooms going forward.
[scribd id=22093019 key=key-2gxx3dhbd5qhhk35cq8w] [scribd id=22093724 key=key-hj15pw20y6vx6dffvfa]

I couldn’t find a coloring book attached but found this one online:
http://dsnetworkaz.wordpress.com/downloads/coloring-book-for-kids-what-you-should-know-about-down-syndrome/
This is the coloring book that is referenced in the blog post. enjoy and I hope you can use this to help make your child’s educational community a better place.
Justin
What a wonderful list of activities to show others what it feels like physically to have Down’s.
I am a writer,and the mother of a teen with Down’s and people have asked me to try writing a book like “The Curious Incident of the Dog in the Night” from the POV of a person with Down’s. I have found this incredibly difficult. But the physical realm is a good start in helping us all understand–thanks so much!
Jennifer McDowell
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That which we do today will echo throughout the generations to come
One of our wonderful visitors wrote in asking for activities to do with a group of people to help them get an understanding of what it might be like to have Down syndrome. The activities included are great for parents to present to their child’s class, a teacher to present to their class, or even a student to present to their class as a project. We appreciate this educator’s commitment to making the world a better and more accommodating. Thank you for everything that you do.
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That which we do today will echo throughout the generations to come
One of our wonderful visitors wrote in asking for activities to do with a group of people to help them get an understanding of what it might be like to have Down syndrome. The activities included are great for parents to present to their child’s class, a teacher to present to their class, or even a student to present to their class as a project. We appreciate this educator’s commitment to making the world a better and more accommodating. Thank you for everything that you do.
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Long Island Buddy Walk – Alexander’s Angels – Down Syndrome Research and Treatment Foundation
Let’s welcome the latest addition to the DownSyndrome.com team, Laura Suer. Laura has accepted a position as a participating volunteer and editorial staff member who will focus on partner outreach and strategy. She has been active on the site since its inception blogging at the URL tri21.downsyndrome.com. One of Laura’s first coups (I’m sure one of many) is to establish a relationship with Alexander’s Angels who runs the Long Island Buddy Walk and has a great future of providing much needed services to the constituents of Long Island.
Thank you Laura for bridging the relationship with such a wonderful organization. If you live in the Long Island area or if you have the inclination to help their wonderful support group, please consider providing assistance in the form of either volunteerism or financial support. Additionally, the Down Syndrome Research and Treatment Fund has an online store that further supports important DS research that hopefully will benefit all of our loved ones in the future. Support for DSRTF can be in the form of purchasing items from the Down Syndrome Store.
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What is Down Syndrome?
Down syndrome is a genetic disorder that delays in physical and intellectual development. The condition varies in severity, so developmental problems may range from mild to serious.
Down syndrome is the most common genetic cause of severe learning disabilities in children, occurring in one in every 800 infants. Every year, as many as 6,000 babies are born with Down syndrome in the United States. The condition is named after John Langdon Down, the doctor who first identified the syndrome.
There’s no medical cure for this condition. But increased understanding of Down syndrome and early interventions make a big difference in the lives of both children and adults with Down syndrome.
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