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terry cooper posted an update: 17 hours, 39 minutes ago · View
haven’t been here in a while,been a busy summer and being a single parent as well as the care-giver for my mother is a all day job.we had a good summer after a bout with scarlet fever,i didn’t know that was still around,but everything is fine now.started back to school 2 weeks ago and little miss was very happy.mariah loves school.still no progress on the potty training but she will sit on the toilet now.
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Justin and Wendy Damilowski are now friends 1 day, 1 hour ago · View
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Dan Roeglin uploaded a new picture: Anna Gets Silly for… 1 day, 1 hour ago · View
Anna gets silly whenever she sees a camera. She makes exaggerated grins and I really dont capture her real look. After I snapped this shot, I thought it was such a cute picture that I wanted to share it.
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Dan Roeglin posted an update: 1 day, 2 hours ago · View
Hello everyone. I have an 11 year old daughter with Downs, named Anna. Today was her first day at a new school. It’s a middle school/high school combination. I have confidence in the staff at the school, that she will get through it OK, but Anna did not want to go! She stiffly protested going back after her nice summer break. I just have to keep telling myself ”she’ll be fine”!
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nikki williams became a registered member 1 day, 12 hours ago · View
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Justin and Lisa McGowan are now friends 1 day, 13 hours ago · View
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one thing about having a newborn with DS, is you actually get some sleep at night! My little Hannah is a sleepy head, which was a relief and huge contrast from my experience with my first child.
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Heather and Laura Suer are now friends 2 days, 6 hours ago · View
Thanks so much for the friendship request. I look forward to getting to know all about you and Hannah. I too didn’t know my daughter would have DS. Waiting for the results of those chromosomal studies was agonizing! I remember those first few days of learning about DS all so well. Now my daughter Donna Marie is 5 years old and will be starting kindergarten next week! She also has a 4 year old brother who is pretty ”typical” as they say except for a mild speech and fine motor delay. Even though he is younger, he teaches his big sister all sorts of stuff. They get along pretty well. By the way, BOTH of mine were hiccuping like crazy as babies. I used to feel so bad, but my mom used to say when somebody hiccups it means somebody is thinking of them. I used to call her and tell her to stop thinking of her grandchildren….ha ha ha. Anyway, it is so nice to meet you hear. Ask me anything!
you know, after studying and also reading some people’s blogs, there are some HUGE benefits to having DS kids…they don’t grow up too fast on you like ”typical” kids do. The first years are really the most precious years, and somehow we are blessed enough to be afforded a longer ”visit” in those years. I’m thankful for that! So yours is just now starting to climb out of her baby bed.
I hate the transition to a toddler bed, my hubby changed my oldest’s baby into the toddler bed way too soon! No more cage, so you wind up having to grow WITH the child and re-adapt to THEIR newly found and exhausting freedom,right?! Well, congrats on her graduation. I’m looking forward to getting to know you and your family as well. Thanks for the nice message. 
Yes, you are right about the rate that the kids with DS grow up at in comparison to other kids. In some ways it is a blessing and in some ways I worry what will happen when Donna Marie no longer has us etc. I suppose all children pose different challenges. I am still getting away with using a crib! She has stopped trying to escape. My son is in a todler bed, but he is not too bad about getting up too early. I always try to get up about an hour before the kids do, so that I have a bit of time to myself before the whole family wakes up. How much older is your oldest baby? It is great that Hannay has an older sibling to teach her stuff
*Hannah….not Hannay. (Typo…oops)
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Angie Nebeker became a registered member 2 days, 13 hours ago · View
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Wendy Damilowski became a registered member 2 days, 13 hours ago · View
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Hannah has the hick ups….again! Poor baby gets them ALL THE TIME! LOL
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Diana Hare posted an update: 3 days, 19 hours ago · View
Hello everyone!! I am looking forward to reading and hearing from all of you. Our son is just over four months old now, but we still have not told his other siblings about the fact that he has DS. Can anyone tell me from their experience what a good time is to tell them? His siblings are 12, 10, and 3. None of them have noticed yet that he’s ’different’. We actually thought about not telling them at all until they’d ask us once they noticed some differences in his behavior. We are completely new to this and would welcome your thoughts and suggestions. Thank you, Diana
Hi Diana,
These are such difficult questions and of course they are different for every family. We are going to let our kids just evolve and when they seem like they are figuring out that something is a little different, we will just matter of factly let them know that their brother has a condition called down syndrome but it does not change the person that they already know and love. Of course, we have a little bit of a different situation given that Teddy is the oldest (5) and his two brothers are younger. But my three year old already knows that something is a bit different but it makes no difference to him whatsoever.
I think your 12 and 10 year old should probably be told..They are mature and they will be a great help to you going forward. The same may be true for your three year old but he may be a little young to understand.
I do strongly believe though that it won’t have any impact on how they love and embrace their new brother.
I wish you the best of luck. Please come back and let us know how your wonderful son is doing.
Justin
It would be great to get other opinions about this as well… Please chime in folks.
J-
My son, Jeff, was almost 10 when Jenny was born…he was told the day after Jenny was born. My son, Kenneth, was only 14 months old but he has known since he was 2 or 3…a little bit more each year. Kenneth is only now (at 11) truly realizing the differences between himself and Jenny…hard sometimes for him to deal with, but he too joins in being amazed at the things his sister is learning to do. Both boys have been extremely supportive for their sister and have helped her learn things that most doctors wouldn’t have expected from her.
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Diana Hare became a registered member 3 days, 19 hours ago · View
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