Anybody out there?
January 22nd, 2009
Hey is anybody out there reading this stuff? Please let me know! Anyway, I took my daughter to the endocrinologist for a routine check up today and everything looks pretty good. Is it just me or does it feel like a full time job to just take care of all these appointments? We see the endocrinologist every 3 months, the ENT every 3 months, the eye doctor every 6 months, the cardiologist, the orthotist, we have CPSE meetings, etc etc. My poor daughter sees more specialists than an 90 year old woman!
Skylar
Yes. Im doing a project on Down Syndrome and i found this site and saw where it said if anyone has been reading this. && yeah
Mariah Pope
Yes, I’m new to this site, and wanted to read as much as I can. I know, I know, I’m just starting to realize my son’s doctor’s appointment book is getting thicker..haha
Justin Jilg
How are things progressing? The site has really grown and I’m sure folks would love to hear your experiences.
Justin
Grace Taylor
I’m new to the site. Yes! Yes! I’ve always felt that way. It seems that my daughter has so many “special” needs. It’s not even just the appts. It’s all the other stuff too. There just isn’t enough time in the day to do it all. I decided a long time ago to take my calendar and decide how many out of the house appts. I could handle each week. For me it was 3. Once my weekly allotment was full, I didn’t make any more obligations for that week. It saved my sanity. Did I forget to mention that I have 5(!) kids. Good luck!
Savina Pernisco
my daughter is 8, and the appointments seem to have let up somewhat. though, we all know in life when one thing is taken away another thing is awaiting to take its place.
Justin Jilg
Totally understand…Parents of kids with special needs are on the run .. exhausting.
Justin
betsy wooster
First time I’ve been to this website. I’m new at being online. My daughter, Holly is 20 years old. Reading different stories gave me teary eyes and a lump in my throat. The “early years” seem so far away, but yes it was all consuming. We didn’t have a lot of medical issues and school went well because of awesome teachers. We always stessed the academics so Holly would have basic reading skills. She graduated in 2008. She’s involved in local theatre and has her brown belt in Karate. In high school she was in the chorus and ROTC. She swims. She bowls. She loves life and is very popular.
For me, Holly turning l8 and becoming an “adult” was a huge milestone. Not to mention my MENOPAUSE.
Justin Jilg
Hi Betsy…Thanks so much for sharing Holly’s story. you can’t imagine how much hope and appreciation comes from simple comments like yours. I hope you’ll join the site and help others that have questions and/or concerns.
Sincerely,
Justin