Hi,

I am 5 months pregnant and they found a white spot on the heart, which i assume is a IEF? I wasnt too worried as my blood test and the other ultra sound all came back low risk, however i have now found out that i my sister had a baby with downs, my dads brother had one and my dads aunt. Does anyone know what i should be thinking or feeling right now? Im so worried, but i dont want to terminate, but im not sure how i will come to terms with this?

Hello everyone, my little princess is turning 1 next week and I’m so excited I can hardly contain myself! I was about 30 weeks when I found out Lexi had DS-and they found it quite by accident during an ultrasound for my having Rh antibodies,during this they saw her heart defect and did amnio. I was not at all disturbed or worried about the DS but was rather frantic about the surgery she would be having.At 3 months we took her to Stollery Childrens Hospital in Edmonton and the surgery went SO smooth she was out in 7 days, at a follow up apt her cardiologist sais she doesnt remember the last time she saw a repair done so well!:) We still have some issues with hearing but are waiting on more testing,in the meantime I am trying to learn baby sign as even though she can hear I feel it would be good to communicate as it could be years before she talks.I do have a question regarding physio. I got a call saying they were sending Lexi ”hip-huggers” to help keep her legs togerther-has anyone ever heard of this? is it necessary? I dont think Lex is any more ’flexable’ than normal for ds and I just dont want to do anything unnecessary. We live in a very small town,her therapists come from out of town (a not much larger town) and there is not much knowledge on ds around here.Her doc. in town didnt even know there was a seperate growth chart for ds children,so I thought I would the experts-YOU-.no one knows more than a mom/dad with experiance!:)
This seems to be a great group and I’m glad I found it.

This would be my message to all expecting moms of Down Syndrome babies- we did not know that we were having a DS baby and only found out he was the day after he was born. A mothers Love is Blind and you will still think that your baby is the most beautiful baby ever created, you will be ever more so protective over this special baby than any other and i can honestly tell you with my hand on my heart that it will be the greatest thing that has ever happened to you- the world will seem more colorful and life will have a meaning like never before. As your child reaches each milestone ( no matter how long they take because they will get there) there is a feeling in your heart that cannot be explained, its beyond proud!!!! lol xxx

Well Bradley had his first birthday April 14th. Happy Birthday to my beautiful son I Love you!! What an action packed first year. Appointments, accomplishments, sad moments and many many happy moments. Bradley is in physio to still help with strength and is coming along excellently. Has 4 teeth and he is quite aware as to what they can do LOL We did find out he has a severe hearing loss in his right ear and mild to moderate in his left ear. One of the problems is the doctor says Bradley has the tiniest ear canals he has ever seen. He is scheduled to see an ear,nose and throat specialist at Sick Kids Hospital in Toronto to see about having tubes put in for him. No ear infections yet thank god. Other than that, health wise he has been fantastic. I am so proud of him having to work him hard sometimes. He is a trooper. Well he is waiting for me to go outside to build his swing set for him. Just been waiting for good weather. Hope everyone is good and have a great day. Brads Dad