DownSyndrome.com | New and Expecting Parents | Group Activity http://downsyndrome.com/groups/new-and-expecting-parents/activity/feed New and Expecting Parents - Group Activity Feed Sun, 05 Feb 2012 10:46:38 +0000 http://buddypress.org/?v=1.5.3.1 en http://downsyndrome.com/activity/p/14273/ niamh posted an update in the group New and Expecting Parents: Hi Everyone. My name is Niamh Mc Ardle, I live in Ireland […] http://downsyndrome.com/activity/p/14273/ Wed, 23 Nov 2011 10:06:49 +0000 niamh posted an update in the group New and Expecting Parents Hi Everyone. My name is Niamh Mc Ardle, I live in Ireland and have 2 sons, Zach and Alex. Zach is 5 and Alex is 4 and Zach has Downs Syndrome. We didn't know when Zach was born that he had downs. He passed all the usual paediatric tests and it was only when I looked at him later on that I thought he had some of the usual downs features. I will not say that we were not devasted at the beginning as it was totally unexpected. But Zach had no heart problems and no major health implications. 5 Years on, I can say that he is an absolutely charmer. He is in 'normal' school in the same class as his brother. He is quite lazy and needs to be 'rewarded' or promised rewards when we want him to do his homework/ speech exercises etc. but once he is excited about something, or once an element of 'fun' is brought into each task, he becomes enthused. For all new parents out there, yes, it is a mixed bag of emotions for quite some time after your child is born, but 5 years on I can say that we have more or less got over our initial sadness and are simply enjoying our beautiful child.

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]]> http://downsyndrome.com/activity/p/14272/ niamh posted an update in the group New and Expecting Parents: Hi http://downsyndrome.com/activity/p/14272/ Wed, 23 Nov 2011 10:00:37 +0000 niamh posted an update in the group New and Expecting Parents Hi

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]]> http://downsyndrome.com/activity/p/14271/ niamh joined the group New and Expecting Parents http://downsyndrome.com/activity/p/14271/ Wed, 23 Nov 2011 09:59:52 +0000 niamh joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/13770/ rrivas posted an update in the group New and Expecting Parents: Happy to be here and excited to meet some amazing people […] http://downsyndrome.com/activity/p/13770/ Sat, 03 Sep 2011 06:21:45 +0000 rrivas posted an update in the group New and Expecting Parents: Happy to be here and excited to meet some amazing people associated with Down syndrome. Only if I knew how to "crop my Avatar" then I could post a picture of my little one. I have a long Labor Day weekend so I have some time to figure out what's most likely something very easy to do! :)

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]]> http://downsyndrome.com/activity/p/13564/ Erica VanderBeek posted an update in the group New and Expecting Parents: I started a new blog a few months ago just blabbing about my […] http://downsyndrome.com/activity/p/13564/ Wed, 06 Jul 2011 16:07:20 +0000 Erica VanderBeek posted an update in the group New and Expecting Parents: I started a new blog a few months ago just blabbing about my life experiences with Alopecia and Down syndrome. If anyone would like to come join me and give me any input, I would love it :) http://awalktoremember-erica.blogspot.com/

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]]> http://downsyndrome.com/activity/p/13557/ Christina Barone posted an update in the group New and Expecting Parents: Hi my name is christina, My son Gabriel has down syndrome. […] http://downsyndrome.com/activity/p/13557/ Wed, 06 Jul 2011 03:51:36 +0000 Christina Barone posted an update in the group New and Expecting Parents: Hi my name is christina, My son Gabriel has down syndrome. he is two and we are having a hard time getting him to eat. some say it's because he is picky some say he wants to do it himself. anyone else have this problem? any advice??

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]]> http://downsyndrome.com/activity/p/13517/ Erica VanderBeek posted an update in the group New and Expecting Parents: Hey Everyone! Just wanted to check in and say Hi to […] http://downsyndrome.com/activity/p/13517/ Thu, 30 Jun 2011 21:53:32 +0000 Erica VanderBeek posted an update in the group New and Expecting Parents: Hey Everyone! Just wanted to check in and say Hi to everyone. God is So Good!!! I have a blog awalktoremember-erica.blogspot.com It's really just me rambling on about nothing, but it's fun. I'm new so if ya wanna get on there and help me out a little bit, feel free. Have a GREAT 4th of July Weekend!!!

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]]> http://downsyndrome.com/activity/p/13417/ Rick Smith posted an update in the group New and Expecting Parents: Hey everyone. I wanted to let you know about our new website […] http://downsyndrome.com/activity/p/13417/ Sat, 18 Jun 2011 06:07:30 +0000 Rick Smith posted an update in the group New and Expecting Parents: Hey everyone. I wanted to let you know about our new website http://noahsdad.com ! OUr son Noah was born on Dec 15, 2010 and since then we have been learning so much! And having a ton of fun doing it! We wanted to create a site where people could get a look at the life of a family raising a child w/ Down Syndrome. I think if the world just had good, ACCURATE information, they wouldn't choose to terminate the pregnancy. My hope is to let the world see that our life is much more "normal" then it is "un-normal!" :)

The response has really good! I'd love for you guys to visit, and link to the site. you can also subscribe at http://noahsdad.com/subscribe ... My wife is a pediatrician and is in the process of writing some great resources that you can keep at hand...we are even making a "friends starter kit!" Let's be honest, most of our friends didn't know how to respond at first! :) I'm looking forward to hearing your stories and getting to know you!

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]]> http://downsyndrome.com/activity/p/13389/ Jen McArthur Logan posted an update in the group New and Expecting Parents: Hi, I'm Jen and I'm Mom to 4 month old twins, Wyatt and […] http://downsyndrome.com/activity/p/13389/ Thu, 16 Jun 2011 13:31:28 +0000 Jen McArthur Logan posted an update in the group New and Expecting Parents: Hi,
I'm Jen and I'm Mom to 4 month old twins, Wyatt and Zoe. Wyatt has DS, Zoe does not. They also have an older brother Quinn who is 5.

Any DS/Non DS twin parents: how did you juggle the differences in development?
Any twin parents: How did you manage to juggle twins and older children?

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]]> http://downsyndrome.com/activity/p/12215/ anserjaveed posted an update in the group New and Expecting Parents: i need some usefull information for my daughter,s mental growth http://downsyndrome.com/activity/p/12215/ Sat, 26 Feb 2011 17:17:25 +0000 anserjaveed posted an update in the group New and Expecting Parents: i need some usefull information for my daughter,s mental growth

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]]> http://downsyndrome.com/activity/p/12214/ anserjaveed joined the group New and Expecting Parents http://downsyndrome.com/activity/p/12214/ Sat, 26 Feb 2011 17:14:57 +0000 anserjaveed joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/11375/ Clarissa Capuano joined the group New and Expecting Parents http://downsyndrome.com/activity/p/11375/ Sun, 16 Jan 2011 20:40:24 +0000 Clarissa Capuano joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/11040/ Frank West posted an update in the group New and Expecting Parents: HI All, My daughter was born on new years day. We found out […] http://downsyndrome.com/activity/p/11040/ Fri, 07 Jan 2011 04:50:51 +0000 Frank West posted an update in the group New and Expecting Parents: HI All, My daughter was born on new years day. We found out after she was born she had down syndrome (the hospital did a genetic test to confirm), so it was quite a shock. While at the hospital she had an ultrasound of her heart, and there were no problems at all. We have her first appointment with a geneticist next week, and I ordered a book on Amazon but it hasn't arrived yet. We love our baby, but we are completely confused and not really sure what we are heading into or what is coming in our families future. Where do we go to start learning how raising our daughter will be like? What do we need to do now?

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]]> http://downsyndrome.com/activity/p/9263/ Brittney joined the group New and Expecting Parents http://downsyndrome.com/activity/p/9263/ Mon, 18 Oct 2010 07:53:15 +0000 Brittney joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/9262/ Miranda joined the group New and Expecting Parents http://downsyndrome.com/activity/p/9262/ Mon, 18 Oct 2010 03:02:42 +0000 Miranda joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/8872/ Dani posted an update in the group New and Expecting Parents: Hi, I am 5 months pregnant and they found a white spot on […] http://downsyndrome.com/activity/p/8872/ Sun, 11 Jul 2010 04:12:03 +0000 Dani posted an update in the group New and Expecting Parents: Hi,

I am 5 months pregnant and they found a white spot on the heart, which i assume is a IEF? I wasnt too worried as my blood test and the other ultra sound all came back low risk, however i have now found out that i my sister had a baby with downs, my dads brother had one and my dads aunt. Does anyone know what i should be thinking or feeling right now? Im so worried, but i dont want to terminate, but im not sure how i will come to terms with this?

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]]> http://downsyndrome.com/activity/p/8871/ Dani joined the group New and Expecting Parents http://downsyndrome.com/activity/p/8871/ Sun, 11 Jul 2010 04:09:17 +0000 Dani joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/8802/ Kathleen posted an update in the group New and Expecting Parents: Hello everyone, my little princess is turning 1 next week […] http://downsyndrome.com/activity/p/8802/ Sat, 26 Jun 2010 13:22:46 +0000 Kathleen posted an update in the group New and Expecting Parents: Hello everyone, my little princess is turning 1 next week and I'm so excited I can hardly contain myself! I was about 30 weeks when I found out Lexi had DS-and they found it quite by accident during an ultrasound for my having Rh antibodies,during this they saw her heart defect and did amnio. I was not at all disturbed or worried about the DS but was rather frantic about the surgery she would be having.At 3 months we took her to Stollery Childrens Hospital in Edmonton and the surgery went SO smooth she was out in 7 days, at a follow up apt her cardiologist sais she doesnt remember the last time she saw a repair done so well!:) We still have some issues with hearing but are waiting on more testing,in the meantime I am trying to learn baby sign as even though she can hear I feel it would be good to communicate as it could be years before she talks.I do have a question regarding physio. I got a call saying they were sending Lexi "hip-huggers" to help keep her legs togerther-has anyone ever heard of this? is it necessary? I dont think Lex is any more 'flexable' than normal for ds and I just dont want to do anything unnecessary. We live in a very small town,her therapists come from out of town (a not much larger town) and there is not much knowledge on ds around here.Her doc. in town didnt even know there was a seperate growth chart for ds children,so I thought I would the experts-YOU-.no one knows more than a mom/dad with experiance!:)
This seems to be a great group and I'm glad I found it.

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]]> http://downsyndrome.com/activity/p/8801/ Kathleen joined the group New and Expecting Parents http://downsyndrome.com/activity/p/8801/ Sat, 26 Jun 2010 13:09:05 +0000 Kathleen joined the group New and Expecting Parents

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]]> http://downsyndrome.com/activity/p/8708/ angela ras posted an update in the group New and Expecting Parents: This would be my message to all expecting moms of Down […] http://downsyndrome.com/activity/p/8708/ Sun, 20 Jun 2010 17:05:04 +0000 angela ras posted an update in the group New and Expecting Parents: This would be my message to all expecting moms of Down Syndrome babies- we did not know that we were having a DS baby and only found out he was the day after he was born. A mothers Love is Blind and you will still think that your baby is the most beautiful baby ever created, you will be ever more so protective over this special baby than any other and i can honestly tell you with my hand on my heart that it will be the greatest thing that has ever happened to you- the world will seem more colorful and life will have a meaning like never before. As your child reaches each milestone ( no matter how long they take because they will get there) there is a feeling in your heart that cannot be explained, its beyond proud!!!! lol xxx

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