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Welcome to DownSyndrome.com

Public Group  |  active 6 months, 2 weeks ago ago

Thank you so much for joining this fledgling community. I have been working hard on it and it is truly a labor of love. It has a long way to go but please make suggestions, participate, share, etc.

I am absolutely thrilled you trusted me it to stop bye.

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  • 6 months, 2 weeks ago

    Janet Stafford

    Janet Stafford joined the group Welcome to DownSyndrome.com 6 months, 2 weeks ago

  • 7 months, 3 weeks ago

    kimberly carter

    kimberly carter Posted an update in Welcome to DownSyndrome.com: 7 months, 3 weeks ago

    Everythings going good. Gabriel got his special new shoes and braces a few weeks ago. His physical therapist said she doesn’t foresee him needing them for long though. He can now pull himself up to standing when he’s in his playpen or crib.

  • 7 months, 3 weeks ago

    Jen McArthur Logan

    Jen McArthur Logan Posted an update in Welcome to DownSyndrome.com: 7 months, 3 weeks ago

    Hi there… just joined a couple of days ago and still trying to figure out a few aspects of this site.
    How does one start a blog here?

    • Profile picture of kimberly carter
      kimberly carter replied 7 months, 3 weeks ago

      Hi Jen. Like you, I’m still trying to figure everything out. Only its not just this site. I’m not very computer literate so I’m trying to figure out the whole computer and internet thing. Your babies are beautiful. How old are they now?

      • Profile picture of Jen McArthur Logan
        Jen McArthur Logan replied 7 months, 3 weeks ago

        Hi Kimberly… I am computer literate and I find it very confusing… so don’t feel bad.
        They are 4 months old now (minus 6 weeks developmentally as they were preemies).

  • 9 months, 1 week ago

    Naghma Naz Hasnain

    Naghma Naz Hasnain wrote a new blog post hello I My son Abdullah is one year… in Welcome to DownSyndrome.com: 9 months, 1 week ago

    hello I My son Abdullah is one year old but still have not yet started teething. Does any one have any idea when kids with DS start teething. I am just too concerned about this.

    • Profile picture of Shawn Reynolds
      Shawn Reynolds replied 7 months, 4 weeks ago

      My son Connor was slow in getting his teeth as well. His twin sister had a mouth full and he was no where close. In retrospect I truly believe there are no “mistakes” and the slow process of teething goes along with giving your son time to develop the proper muscle tone with jaws, tongue, mouth, throat, digestive system etc to be able to…[Read more]

  • 9 months, 3 weeks ago

    Kari

    Kari Posted an update in Welcome to DownSyndrome.com: 9 months, 3 weeks ago

    My husband and I are looking to transfer with his job this summer. We are trying to find the best places in the country for a child with Downs Syndrome and we’re having a hard time finding any information. Our baby girl with D.S. is 3 months old and we have a 3 year old and a 2 year old as well. Suggestions anyone?

    • Profile picture of Alex's Mom
      Alex's Mom replied 9 months, 2 weeks ago

      HI there – not Colorado!! We had great services when we lived in IL and NJ is supposed to be good too – but don’t let that make your decision – there are so many opportunities everywhere – support groups, not for profits – growing awareness everywhere

    • Profile picture of Kari
      Kari replied 9 months, 2 weeks ago

      Thank you so much! We were actually looking at Colorado, so that’s good to know.

    • Profile picture of Shawn Reynolds
      Shawn Reynolds replied 7 months, 4 weeks ago

      Hi Kari, I’m just finding this group…have you made any decisions yet? My kids were born in Albuquerque, NM and they had a great early intervention program; but, we moved when they were 2 so not sure of programs after that. Jacksonville, NC is NOT a place with great resources.

    • Profile picture of kimberly carter
      kimberly carter replied 7 months, 3 weeks ago

      I live in Jacksonville Arkansas and so far resources seem pretty good, but my baby is only 19 months old so I’m still trying to learn about everything. But we do have a very good pediatrician who is knowledgeable about DS and a good school. Also my pediatrician told me there are two other schools nearby that are also good.

  • 9 months, 3 weeks ago

    Kari

    Kari joined the group Welcome to DownSyndrome.com 9 months, 3 weeks ago

    • Profile picture of kimberly carter
      kimberly carter replied 7 months, 3 weeks ago

      Hi Kari. I’ve been trying to send you a message but there’s some kind of problem. It keeps saying there was an error and it won’t send. Anyway, its very nice to meet you.

  • 10 months, 2 weeks ago

    Mary

    Mary Posted an update in Welcome to DownSyndrome.com: 10 months, 2 weeks ago

    My son Chris is 9 years old and at times he is great and then out of nowhere he starts throwing and hitting. He has hit staff members at school. Has anyone else experienced this ? maybe they can give me a few suggestions. Thank you

  • 10 months, 4 weeks ago

    Naghma Naz Hasnain

    Naghma Naz Hasnain joined the group Welcome to DownSyndrome.com 10 months, 4 weeks ago

  • 11 months ago

    Edward Palmer

    Edward Palmer wrote a new blog post is there anyone in NYC that may have som… in Welcome to DownSyndrome.com: 11 months ago

    is there anyone in NYC that may have some info on middle schools suited for children with Down’s.
    Evie is ging to six grade in September and we are looking for a school that will suit her. Don’t want to do the public school. It has not been effective in meeting her needs.

    • Profile picture of Justin Jilg
      Justin Jilg replied 11 months ago

      Hi Edward, how’s your search going? If replies have been anemic – I’ll shoot out an email to the group and see what comes back. thanks for joining.

  • 11 months, 2 weeks ago

    anserjaveed

    anserjaveed Posted an update in Welcome to DownSyndrome.com: 11 months, 2 weeks ago

    thanks

  • 11 months, 2 weeks ago

    anserjaveed

    anserjaveed joined the group Welcome to DownSyndrome.com 11 months, 2 weeks ago

  • 11 months, 3 weeks ago

    Alyssa L Koruschak

    Alyssa L Koruschak Posted an update in Welcome to DownSyndrome.com: 11 months, 3 weeks ago

    I look forward to getting to know people on here. Thanks for the invite!

  • 12 months ago

    Debra

    Debra Forand Posted an update in Welcome to DownSyndrome.com: 12 months ago

    Just joined, wow a fantastic site! Single mom of an 8yr old boy with Down syndrome, parent advocate, and so much more!

  • 12 months ago

    Debra

    Debra Forand joined the group Welcome to DownSyndrome.com 12 months ago

  • 1 year ago

    Leslie Ann Driver

    Leslie Ann Driver Posted an update in Welcome to DownSyndrome.com: 1 year ago

    It has been next to impossible to find any support for family of a Down Syndrome Adult. I feel so fortunate to have found this cite. Hoping to connect with others that can give me advice and support. Hopefully I will not fear the future now.

    • Profile picture of hinda
      hinda replied 10 months, 3 weeks ago

      So glad to see an adult DS pls tell us your abilities

  • 1 year ago

    Francisco

    Francisco joined the group Welcome to DownSyndrome.com 1 year ago

  • 1 year ago

    Clarissa Capuano

    Clarissa Capuano joined the group Welcome to DownSyndrome.com 1 year ago

  • 1 year, 3 months ago

    Mick Mayers

    Mick Mayers Posted an update in Welcome to DownSyndrome.com: 1 year, 3 months ago

    I have been signed up for a while, but everything else has kept me sidetracked. I will pass this site on to everyone I have contact with and post it on the Caroline & Friends website. We need to build community. Great idea and I’ll help as much as possible.

  • 1 year, 3 months ago

    Brittney

    Brittney joined the group Welcome to DownSyndrome.com 1 year, 3 months ago

  • 1 year, 7 months ago

    Kathleen

    Kathleen joined the group Welcome to DownSyndrome.com 1 year, 7 months ago

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Recent Networkwide Posts

  • Joyce Page wrote a new post, My Challenge , on the site Becky's Next Page 1 week, 2 days ago

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    There was a book called Differences in Common written by a mom of an adult with DS that I read in 1991 when Becky was still a toddler (now she is 22).  One of the short stories was called “Why Me?”.  At the […]

  • Joyce Page wrote a new post, Congratulations Becky!, on the site Becky's Next Page 2 weeks, 1 day ago

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  • Justin Jilg wrote a new post, What is Down Syndrome?, on the site DownSyndrome.com 1 month, 3 weeks ago

    The human body is made of cells. All cells contain a center, called a nucleus, in which genes are stored. Genes, which carry the codes responsible for all our inherited characteristics, are grouped along […]

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