Comments on: History of Down Syndrome and Useful Information

By: Justin

Justin — Tue, 02 Mar 2010 07:17:54 +0000

Taylor, it is wonderful to meet you. welcome to the site…I look forward to getting to know you more.

Justin

By: taylor henrie

taylor henrie — Mon, 01 Mar 2010 21:11:28 +0000

hi my name is taylor dawn henrie and i have down syindrom and my faveritent is Acting and Dance

By: aimebell

aimebell — Mon, 06 Apr 2009 11:32:19 +0000

Hi, I am new to this site. I am a Child Care Provider. I have a small daycare in home. No more than six children at a time. I also am a foster parent. I have cared for many children in the last 20 years. I am familiar with special needs from learning disabilities to drug exposed infants to fas. I will be caring for a child with Down Syndrome come fall. I am looking for tips to help him succeed. We are looking forward to having a baby around. Other than treating him as we would any baby that comes into care, should we add or adjust anything?
Thanks

By: Laura

Laura — Sat, 21 Mar 2009 11:54:18 +0000

A study or mapping of the chromosomes is used to determine wether a person has mosaic down syndrome. Mosaicism means there is just an extra “piece” of a chromosome and not a whole extra chromosome. I think! A geneticist would be a good person to speak with about this matter. He/she would look at this “map” of the chromosomes which is obtained though a simple blood draw. I don’t know what the clinical manifestations (if any) are different between mosaic DS and the more typical DS.

By: ghamma

ghamma — Mon, 09 Mar 2009 18:10:04 +0000

comment:
Could anyone explain to me the definition of mosaic down syndrome and what evaluative tool is used to determine this syndrome.

By: bernard

bernard — Mon, 02 Feb 2009 14:10:10 +0000

Sorry I’m not much of a help. I’m just coming to terms with my son’s ds.

By: admin

admin — Sat, 31 Jan 2009 18:03:58 +0000

Hi Misty,

Teddy also has a thyroid that works overtime. Our Dr. basically said that at some point it will “burn out” and then he will have to go on supplemental medication to even out his metabolism.. until then, he will probably be as skinny as a stick…You just need to pay attention to it with is Ped. going forward.

Teddy was also our first (two other boys since). We had the same concerns as you about subsequent children but the geneticist assured us we didn’t have a hereditary predisposition. So, each subsequent child has the same odds as any other in your age bracket. Because you are so young, it is highly unlikely (although certainly possible).

If you want to have more children, I suggest you think about it just as if your first child were “Typical” …I do think that you Son would appreciate a sibling The best advice of course is to speak with your Dr.

By: tysmom

tysmom — Thu, 29 Jan 2009 22:42:49 +0000

I have a question, I’m not sure if anyone will know the answer… I am a 21 yr old mom of a son with ds. After my son was born I found out that I have hypothyroidism so I started doing research on it and found that some studies show a link between that and having babies with ds. Does anyone know how accurate this is? I am young and still want to have more kids, but my fiance and I are afraid that if we did have another child with ds we might not be as fortunate medically speaking.

By: silverwolf8

silverwolf8 — Wed, 21 Jan 2009 03:27:58 +0000

I work with a DS adult that is 45 yrs old & drs say his body is approx of a 75 yr old But he is very active … he loves to bowl & since his Dad passed away he rarely talks but he does talk tho … Any & all information about DS would be sooooo helpful

By: Jean Rolf

Jean Rolf — Sun, 04 Jan 2009 03:08:59 +0000

I am a mother of a Down syndrome daughter born in 1950 (on my 22nd birthday). I became a member of the local and national ARC in 1953 and worked to educate the community on the retarded. And organized a pre-school class for 4 to 8 year olds. My daugher progressed well, the public school program was mostly geared to crafts and I believe my daughter could have learned much more. She lived at home with me until 1996, I am a widow. After a fall she went to a medical rehab facility in the area and receives good care.
Now she appears to have Alzheimer’s and I don’t know how to cope with that. As her brother said, Susan was 90% happy and 10% stubborn and now it is reversed. She is mostly unhappy, concerned about her possessions. I would like to know what I can do to help her lead a happier life and what I can do to make her life better and for my piece of mind. What is the prognosis?
I am currently a member of the county ARC group and the national ARC. I would appreciate a reply.
Jean Rolf