I would like to preface this article by saying that raising your child, irrespective of the physical or cognignitive capabilties, is no labor at all for a parent. The guidlines below are simply to guide new and expecting parents throgh some of the more unituitive aspects of their early experiences. Having my child, who happens to have Down Syndrome, is without a doubt one of the greatest aspects of my life; if you have any questions whatsoever, please don’t hesitate to send me an email or submit to the forthcoming form on this site and let’s start a dialog about you questions and concerns.
Trisomy 21, better known as Down syndrome, is the most common chromosomal abnormality in humans. People with Down syndrome vary widely in how they are affected, but health problems and lagging development are common. Children with Down syndrome are special needs children who require special parents. The following are some guidelines that my wife and I have subscribed to. We hope they will help you with your journey.
Step 1
Take care of yourself. When you first learn that you are the parent of a child with Down syndrome, you can feel overwhelmed. It helps to talk to other parents in the same situation. Contact the National Down Syndrome Society about support groups and other resources in your area.
Step 2
Use attachment parenting to promote a strong bond with your child. By responding to her emotional cues, you can better to sense what she needs when she can’t tell you. Involve other family, particularly siblings, in raising a child with Down syndrome. Everyone benefits from these relationships.
Step 3
Find a good medical practitioner. People with Down syndrome are subject to many medical problems, with heart defects, vision and hearing problems most common. They should be screened by cardiologists, ophthalmologists and audiologists.
Step 4
Enroll your child in Early Intervention Services soon after birth. Therapists and early childhood teachers come to your home to work on your child’s development. Physical and speech therapies are usually indicated due to delays in these areas. Some degree of mental retardation may be present as well. By age three, your child is eligible for services through the school system. Learn all you can about special education services and rights in your state.
Step 5
Learn from professionals what you can do at home to help your child develop. Children with Down syndrome often have weak muscle tone and can benefit from movement therapy. To help compensate for speech delays, you might teach your child sign language so that he can let those around him know what he wants.
Step 6
Explore the role of diet in your child’s life. Some people believe that people with Down syndrome have more difficulty with the typical American diet of high sugar, additives and preservatives. Try natural foods. If your child is subject to frequent ear infections, limit produce mucous-producing foods. Ask your doctor whether nutritional supplements like alpha-ketoglutaric acid are needed.
Step 7
Enjoy and Love your child. Just like many things in life, parenting is improved by a good attitude. Children with Down syndrome are affectionate and approach life with an enviable joy. Parents, family and friends can profit from time spent with people with Down syndrome.
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John and I have a slightly different situation and need help, please.
I have a Down Syndrome brother(Shane) who is turning 40 in June and we have been taking care of him since January and he now lives with us permanently. Love and adore him. His vocab is very limited but we communicate with him with lots of love, hugs and laughter. We are having a problem with disciplining him though and cannot seem to get through to him to stop throwing stones in our pool. We feel terrible when we shout at him. John has tried splashing a little pool water in his face, but Shane reacts as though he’s been slapped. We love him and only want the best for him. What would be the easiest way to teach him that this is wrong? This is an adult man and we are the “New Parents”.
Until now Shane has been living with my late mom and frail Dad.
Generally he is only a pleasure. Sweet. Gentle. Innocent. Loving.
Please help us.
John and Machelle.
South Africa
I really look foward to hearing other opinions on this situation. I have a 5 yr old so I haven't crossed this bridge yet. There has to be a balance between dignity and letting your brother know what is appropriate and inappropriate. Not knowing your brother, it is difficult to know the intent behind some of his actions…is it to get your attention? is it to simply be mischeivious? I know my son will dump out a glass of liquid anytime he passes one…Drive us crazy but it is something that seems to be apart of his personality that can't be easily changed.
Do you practice timeout? I personally don't think the pavlovian water splashing is going to be healthy/productive in the future but again I am not a subject matter expert here.
Other thoughts anyone?
Justin