Comments on: How to Raise a Child with Down Syndrome http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/ Just another weblog Wed, 10 Mar 2010 19:20:19 -0800 http://wordpress.org/?v=2.8.6 hourly 1 By: Justin http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14898 Justin Sun, 21 Feb 2010 18:13:29 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14898 this has to be one of the most difficult things for us as well. we simply continue to try to get him to go potty multiple times / day...good luck! anyone else out there have any advice? justin this has to be one of the most difficult things for us as well. we simply continue to try to get him to go potty multiple times / day…good luck! anyone else out there have any advice?

justin

]]> By: neda http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14897 neda Thu, 18 Feb 2010 07:29:22 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14897 hi my friends i'm neda from iran.my dauther is 4mounths years old and i love her so much i want to know if a useful vitamin drog for DS childs pleae tell me she starts to babeling and smiling.thanks hi my friends i’m neda from iran.my dauther is 4mounths years old and i love her so much i want to know if a useful vitamin drog for DS childs pleae tell me she starts to babeling and smiling.thanks

]]> By: Gina http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14894 Gina Sun, 14 Feb 2010 23:24:23 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14894 My husband and I have a 8 (almost 9) year old son with down syndrome and are stuggling to get him potty trained. Anyone with any helpful advice on this would be appreciated. My husband and I have a 8 (almost 9) year old son with down syndrome and are stuggling to get him potty trained. Anyone with any helpful advice on this would be appreciated.

]]> By: surya http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14854 surya Sat, 23 Jan 2010 15:08:49 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14854 hi i am surya frm india my 2 year old daughter is down syndrome can any one suggest me which one is helpfull for her she is now walking talk a little bit . hi
i am surya frm india my 2 year old daughter is down syndrome can any one suggest me which one is helpfull for her she is now walking talk a little bit .

]]> By: karl http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14849 karl Wed, 20 Jan 2010 15:43:21 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14849 i think it helps if you believe that god/jesus sent you a ds baby. in reality its just a random event. with 1 billion christians in the world i doubt a divine hand sent you a ds baby. the human mind is easily tricked when your emotions click in....its to bad more people dont think this way, even if its bogus...maybe the abortion rate wouldnt be 93%. ds children and adults are loveable and funny people. i think it helps if you believe that god/jesus sent you a ds baby. in reality its just a random event. with 1 billion christians in the world i doubt a divine hand sent you a ds baby. the human mind is easily tricked when your emotions click in….its to bad more people dont think this way, even if its bogus…maybe the abortion rate wouldnt be 93%. ds children and adults are loveable and funny people.

]]> By: ali http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14827 ali Tue, 05 Jan 2010 17:02:28 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14827 hi all, im a 22yr old mother of a 3month old baby with DS(zak). i had the triple blood test that showed we had a much higher risk of having a down syndrome baby(1 in 101 compared to the usual 1 in 4000ish) so we decided to have an amnio at 17weeks pregnant and i knew before we even got the results that he would have it, but i was battling against hope. i remember my bf kept nagging me to ring up for the results but i wouldnt do it, i was in the bedroom and 10 minutes or so later i heard him on the phone asking for the results, his tone went much softer and i knew immediately the test came back positive, we were both fighting against wanting to cry and staying strong for the other, it was a confusing time. we had discussed what we would do if the baby had DS long before we had any tests done and we had both come to an agreement to keep it. but when we got the results my bf wanted an abortion, but before we were definate on anything we wanted to do as much research as possible, all we found were outdated pictures and imformation on the problems commonly associated with DS, parents praising their DS children as positive as possible without room for any negatives, i dont know why we were looking for negatives, we just needed cold hard facts about living with a baby with DS. we saw countless clueless doctors who pushed us further towards aborting, even ringing us up to see if we had decided yet. i became depressed and started grieving for the baby we were going to abort, i found a website about peoples experiences of finding out their unborn child had problems and how they came to the decisions of aborting, i spent many many nights reading through the whole website and crying at every story, i believe doing this was a key point to how i managed to get through it, to put it simply, i cried as though i had aborted, and then carried on as normal. my bf saw me crying one day and we talked and decided not to abort. since back then, i rarely think about my child having DS, as he is my first, i dont know any different. i dont even see why we made such a big fuss of it when we found out. he had a small hole in the heart which closed up 2months after birth, he was born 4weeks prem and stopped growing in the womb at 32weeks. weight at birth was 4lb 12oz, 2weeks ago he had bronchilitus which he got over fairly quickly. his weight now is 9lb. at 3months he can hold his head up fairly well, he has bilatural hearing loss. he craps, crys, smiles, is loving, and annoying, just like any other baby, but at the end of the day, he is my son, and as aware i am that he might have problems when he gets older, it doesnt matter a single bit. hi all, im a 22yr old mother of a 3month old baby with DS(zak). i had the triple blood test that showed we had a much higher risk of having a down syndrome baby(1 in 101 compared to the usual 1 in 4000ish) so we decided to have an amnio at 17weeks pregnant and i knew before we even got the results that he would have it, but i was battling against hope.

i remember my bf kept nagging me to ring up for the results but i wouldnt do it, i was in the bedroom and 10 minutes or so later i heard him on the phone asking for the results, his tone went much softer and i knew immediately the test came back positive, we were both fighting against wanting to cry and staying strong for the other, it was a confusing time.

we had discussed what we would do if the baby had DS long before we had any tests done and we had both come to an agreement to keep it. but when we got the results my bf wanted an abortion, but before we were definate on anything we wanted to do as much research as possible, all we found were outdated pictures and imformation on the problems commonly associated with DS, parents praising their DS children as positive as possible without room for any negatives, i dont know why we were looking for negatives, we just needed cold hard facts about living with a baby with DS.

we saw countless clueless doctors who pushed us further towards aborting, even ringing us up to see if we had decided yet.
i became depressed and started grieving for the baby we were going to abort, i found a website about peoples experiences of finding out their unborn child had problems and how they came to the decisions of aborting, i spent many many nights reading through the whole website and crying at every story, i believe doing this was a key point to how i managed to get through it, to put it simply, i cried as though i had aborted, and then carried on as normal.
my bf saw me crying one day and we talked and decided not to abort.

since back then, i rarely think about my child having DS, as he is my first, i dont know any different. i dont even see why we made such a big fuss of it when we found out.
he had a small hole in the heart which closed up 2months after birth, he was born 4weeks prem and stopped growing in the womb at 32weeks. weight at birth was 4lb 12oz, 2weeks ago he had bronchilitus which he got over fairly quickly. his weight now is 9lb.
at 3months he can hold his head up fairly well, he has bilatural hearing loss. he craps, crys, smiles, is loving, and annoying, just like any other baby, but at the end of the day, he is my son, and as aware i am that he might have problems when he gets older, it doesnt matter a single bit.

]]> By: Austin Wilson http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14815 Austin Wilson Sun, 27 Dec 2009 03:15:08 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14815 I am getting ready to potty train my little girl in January 2010. Being a single dad of a little girl, I am going to get my babysitter to start for me. Any suggestions for me from anyone? I got a potty for her, but her physio therapist suggests a ring ontop of the toilet seat?? Hope turned 4 at the end of October and will be starting school next fall. Hope everyone is doing well and had a great Christmas. Night all. I am getting ready to potty train my little girl in January 2010. Being a single dad of a little girl, I am going to get my babysitter to start for me. Any suggestions for me from anyone? I got a potty for her, but her physio therapist suggests a ring ontop of the toilet seat?? Hope turned 4 at the end of October and will be starting school next fall. Hope everyone is doing well and had a great Christmas. Night all.

]]> By: Justin http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14423 Justin Wed, 04 Nov 2009 04:53:18 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14423 Hi Sydney, Please see the article on the front of the site that was inspired by your comment...Thanks so much for reaching out to try to help you and your colleagues better create a curriculum that will benefit the communities that we live in. We very much appreciate your efforts. http://downsyndrome.com/down-syndrome-education Justin Hi Sydney,

Please see the article on the front of the site that was inspired by your comment…Thanks so much for reaching out to try to help you and your colleagues better create a curriculum that will benefit the communities that we live in. We very much appreciate your efforts.

http://downsyndrome.com/down-syndrome-education

Justin

]]> By: Justin http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14411 Justin Tue, 03 Nov 2009 20:00:24 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14411 Stay tuned Sydney.. Well have something for you this evening. Justin Stay tuned Sydney.. Well have something for you this evening.

Justin

]]> By: Sydney http://downsyndrome.com/how-to-raise-a-child-with-down-syndrome/comment-page-1/#comment-14366 Sydney Tue, 03 Nov 2009 02:35:22 +0000 http://downsyndrome.com.s44864.gridserver.com/?p=14#comment-14366 Justin, I am currently a senior at Park University in Parkville, Missouri. I am majoring in Elementary Education and I am presently taking a course named, Exceptional Child. I have an assignment to do on Down Syndrome. I will be developing a better understanding of what it is and the ways in which a teacher can meet their needs in education. I was wondering if there was anyway for you to give me some suggestions on how to incorporate and accommodate to their needs in the classroom? One thing that I am really looking for is an activity that I could do in my class to show my peers and future teachers, what people diagnosed with Down Syndrome are feeling. I know this will be incredibly hard, but I would just like them to get a taste of it. This is why I am looking for someone with more knowledge about Down Syndrome. If you have any suggestions, I would greatly appreciate it. Thank you for you time and I hope to hear from you soon, Sydney Justin,

I am currently a senior at Park University in Parkville, Missouri. I am majoring in Elementary Education and I am presently taking a course named, Exceptional Child. I have an assignment to do on Down Syndrome. I will be developing a better understanding of what it is and the ways in which a teacher can meet their needs in education. I was wondering if there was anyway for you to give me some suggestions on how to incorporate and accommodate to their needs in the classroom? One thing that I am really looking for is an activity that I could do in my class to show my peers and future teachers, what people diagnosed with Down Syndrome are feeling. I know this will be incredibly hard, but I would just like them to get a taste of it. This is why I am looking for someone with more knowledge about Down Syndrome. If you have any suggestions, I would greatly appreciate it.

Thank you for you time and I hope to hear from you soon,

Sydney

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