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active 51 minutes ago
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Phoenix, AZ

About Me:

My name is Justin Jilg and my wife and I have three little boys: Teddy, Cooper, and Cade. Teddy, 4, has down syndrome and has inspired me to do this site.

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Family…

Full Name

Justin Jilg

Justin Jilg's Activity

  • Justin Jilg commented on the blog post Vist my new blog as well as this oldie but goodie!   21 hours, 58 minutes ago

    all the best to you..I hope you and yours are doing well.

    thanks for helping kick off this site. FYI..if you need any help exporting your posts, let me know…it is easy to import them into Typepad and it will give you a good start.

    Sincerely,
    Justin

  • Justin Jilg and Harvey are now friends   2 days, 19 hours ago

  • Justin Jilg commented on the blog post Down Syndrome Signs and Symptoms   2 days, 19 hours ago

    Thank you! My only suggestion to you is be prepared to have a wonderful little baby that will keep you awake…Get some sleep as often as you can ;)

    Your baby is going to be great! You are going to develop a bond with her that I can’t even explain right now. Something will change [...]

  • Justin Jilg wrote a new blog post: An open letter to my friends and colleagues   4 days, 12 hours ago

    I challenge all of you to send a version of letter below to your HR departments, executives, organizational leadership, schools administrators, business that you work with, friends, family, etc.

    The word “retarded” is being used more and more and it is something that not only bothers me but I’m sure many others who may no feel [...]

  • Justin Jilg commented on the blog post History of Down Syndrome and Useful Information   1 week, 2 days ago

    Taylor, it is wonderful to meet you. welcome to the site…I look forward to getting to know you more.

    Justin

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Viewing post 1 to 5 (66 total posts)  
  • Hey Justin, I had a question I did want to ask you. I see that you have other children are they older or younger than Teddy? We have 4 other daughters all under the age of 5. I have not figured out how the best way is to explain to them about their unborn baby sister. I have been told by others to tell them and not to tell them. I am not sure what to do nor say. They are all so young, will they even notice that anything is different with their sister when she is born? Down syndrome is not what their sister is, it is something she has. Sorry I know this is a very odd question. Thank you in advance for any advice.

  • hi justin…

    i have a happy thing to share with you..my son is walking a few steps indepentently…he is 19 month old now…its because of you only i could interact with many parents and got many tips to raise my son…thank you justin and thank god…

  • Hey everyone. It’s been awhile since I’ve been here. Catching up with every thing Bradley is doing,appointments etc. He is now 10 months old has his two bottom teeth pretty much all the way through now. He’s babbling like there is no tomorrow and loves to play rough. lol he’s a big boy. Eats toast and loves his bananas, pears, juice, still can’t get him to eat any type of cereals especially rice cereal. He gets uncontrollably sick for hours. We saw his dietitian yesterday and gave us alot of good advice as to what we should be giving him at this stage. (YES SPAGHETTI!!) We finally got set up with a Physiotherapist who will be starting to come by our home next week to help with Bradleys muscle tone as he still can’t quite hold up his head on his own but he sure does try. I put up some new photos in his profile photo album. If you have a second have a look.Hope all is well with everyone and have a great day. Bradsdad

  • Hi Justin! My name is Diana and im new to this site but im looking forward to chatting with u and getting to know more about DS through u and all the woderfull ppl on this site. i have a 15 month old son with DS and i would like to learn about other ppls experienses with their children. ive been through alot already but itll be nice to know whats coming my way. =)

  • Hi Justin – once again thanks for putting together this great web site for everyone.I just got a comment on one of my posts from Diana in Mexico. She is student teaching a 4th grade class and there is a child with down syndrome in the class – she was looking for tips to help her educate this child. I set up a forum topic – but I am not sure if this is the way to get responses back from other parents. Is there a more ”public” way to help Diana? Thanks!