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active 5 hours, 39 minutes ago

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Justin Jilg

About Me:

My name is Justin Jilg and my wife and I have three little boys: Teddy, Cooper, and Cade. Teddy, 4, has down syndrome and has inspired me to do this site.

City:

Phoenix, AZ

Primary Interests:

Family…

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  • hi…

    it’s better if there is an ”ask an expert” section..

  • Hi Justin, We are fairly new to the whole experience of having a child who has Down Syndrome. My son Jonathan is three months old and is currently hospitalized waiting to have his AV canal repaired. During our hospital stay I was researching and trying to learn more about DS and came accross this sit so I decided to sign us up and see how things go. Thanks for reaching out.

  • Hi Justin and to your family.
    Thank you for adding yourselves to my ”friends” list. I have a grand-daughter whom is alyssa and she was born with down syndrome.Next week we’ll be celebration her second birthday on june 12.
    she is very special to us-for us she our angel send by god to us.
    alyssa was also born deaf in both ears-but we’re teaching her sign languges and she is getting it.
    I do her name in sign and she point to her,then I do grandmom and mama and she point to the person that go with the name.
    well I am going to try and post a picture of her-so you can get to know her.
    I don’t know if you know about myspace website-I am also there-and I got alot
    of photo of her-if case you also have myspace look for me and add me at your friend.
    again thanks for adding your self.God bless you.

  • You Support Please!!

    I started a program for Individuals with Intellectual Disabilities focusing on their health and wellness and am currently in a small business grant competition with the hopes of expanding the program. Please take a few minutes to watch the video and vote, ”CLICK ON INSPIRING, USEFUL or FUNNY.

    THANKS!!

  • Hi Justin and to your family.
    Thank you for adding yourselves to my ”friends” list. As you know, I am researching for a family member, but it is nice to get involved with families who have a child with Down Syndrome. This allows me access to more knowledge, and first hand, that I can pass on to my family.
    Your little boy, Teddy is a real cutie with devilish eyes. Watch out! I bet he has everyone wrapped around his ”little finger”. A real little charmer I would say.

    I am still reading some amazing stories on other websites, and loving it.
    There is definitely a lot of information out there relating to Down Syndrome, which must give families like yourselves, peace of mind, knowing you aren’t alone.

    I am very interested in this true story of the young woman who ”reversed her down syndrome”, as it gives my family member some hope.
    I/we joined up to her website as a member, as obviously we want to know as much as we can, as to how this ”reversal” can happen. Interesting reading I can tell you, and how it happens, is even more unbelievable. People can join as an affiliate, and receive newsletters only, but I guess they wouldn’t receive all the facts, as does a fully paid up member.
    For the small outlay cost, I know that we are already on the right track, towards happier family members.

    In case someone is reading this and wants to know more, just go to: http://reversedownsyndrome.com/?siteid=14005

    The other website that I love to go into for some lighthearted humour relates to a 24 year old guy, named Dan Drinker, who has put out a few videos. He is just a great guy, and like me, you will laugh and cry over these videos, especially his first one which relates to Barack Obama. I just love it, and have watched it a few times. He has other ones out as well.

    Go to:
    http://www.youtube.com/watch?v=mCKP-FQ3KcE

    Watching Dan go through different stages is brilliant, and gives hope to everyone.

    Keep up the good work.

    Regards to your family and little Teddy

    Skye