Justin and Wendy Damilowski are now friends 1 day, 1 hour ago · View
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It would be great to get other opinions about this as well… Please chime in folks.
J-
Hi Diana,
These are such difficult questions and of course they are different for every family. We are going to let our kids just evolve and when they seem like they are figuring out that something is a little different, we will just matter of factly let them know that their brother has a condition called down syndrome but it does not change the person that they already know and love. Of course, we have a little bit of a different situation given that Teddy is the oldest (5) and his two brothers are younger. But my three year old already knows that something is a bit different but it makes no difference to him whatsoever.
I think your 12 and 10 year old should probably be told..They are mature and they will be a great help to you going forward. The same may be true for your three year old but he may be a little young to understand.
I do strongly believe though that it won’t have any impact on how they love and embrace their new brother.
I wish you the best of luck. Please come back and let us know how your wonderful son is doing.
Justin
What an angelic face..Nice picture. Welcome to the site.
Justin
Justin Jilg posted a new activity comment: 3 days, 10 hours ago · View
Hi… Try this link…welcome to the site.
http://downsyndrome.com/members/bridget/profile/change-avatar/
Justin Jilg and Bogdanescu are now friends 6 days, 3 hours ago · View
Justin Jilg posted an update: 6 days, 20 hours ago · View
@karthur Hello…Welcome to the site. I look forward to getting to know you and yours better. Let me know if you need anything.
Justin
Justin Jilg posted a new activity comment: 6 days, 20 hours ago · View
We have a full-time aide assigned to Teddy although based on the conversation, it was unclear how she was doing during the first week.
That is really good advice about checking out if there are other laws that may be applicable to this situation. We’re pretty up to speed on Title 9 issues but there certainly are other areas where we need to do our homework.
This is a new chapter in all of our lives so I’ll be sure to relay our experiences as often as possible. I appreciate the advice very much.
Justin
Justin Jilg wrote a new blog post: Today was a rough day 1 week, 1 day ago · View
As many of you know, when it comes to my kids, especially Teddy, I am a very optimistic kind of dad. I have this belief system that things are going to work out and Teddy is going to have great experiences in whatever direction life takes him. I treat Teddy exactly the same way as [...]
Hi Justin, this is a great post and a great reminder to all of us….Our kids with down syndrome have great futures ahead of them; from the moment our kids are born we know in our hearts, and we see our kids do everything their siblings and other kids do, just a bit slower. In many cases, we need to provide resources and intervention to assist development, but that is all it is – assistance, our kids do the rest. This post from you affects all of us – our school systems and state budgets are in peril. There should not be a classroom with one teacher and 29 five and six year olds ANYWHERE in this country. It is unbelievable we have regressed this far. Of course Teddy, and the 28 other kids are having difficulty – he is not the only child that will suffer from this lack of guidance and education every kindergartner deserves…It really stinks, and makes our job harder. I know there are other parents of kids in Teddy’s classroom that will have their children act out, this is such an important time in a child’s development. It is a shame, but as you say – you will not give up and perhaps next year or the year after another young family with a child with down syndrome will walk into a kindergarten class in AZ and thank you for staying the course and not giving up. You will have made a difference in the way our kids are educated and included. On a more practical note, do you think you could ask for more assistance in the classroom? – there are federal and state laws that should prevent this student/teacher ratio from happening, especially with kids with special needs. When Alex was younger other parents told me they loved Alex being in the classroom because it guaranteed a lower student/teacher ratio.
Best of luck and most importantly always believe (which I know you do)!
We have a full-time aide assigned to Teddy although based on the conversation, it was unclear how she was doing during the first week.
That is really good advice about checking out if there are other laws that may be applicable to this situation. We’re pretty up to speed on Title 9 issues but there certainly are other areas where we need to do our homework.
This is a new chapter in all of our lives so I’ll be sure to relay our experiences as often as possible. I appreciate the advice very much.
Justin
Justin Jilg posted an update: 1 week, 5 days ago · View
@debbiebanta Hi Debbie … welcome to the site … how are you? We would like to get to know you better. The site may seem a little slow but if you need anything or have any questions … go to the members tab, make some friends (easy just press add friend) and ask some questions..I think you’ll find a ton of users on here are waiting in the wings to interact
…
Justin
Justin Jilg commented on the blog post Preparing for baby 1 week, 5 days ago · View
Hi Cindy … how are things going with you? I love this blog post and I think many of us feel the same way.
Take care.
Justin
Justin Jilg likes Cindy Beeles‘s activity 1 week, 5 days ago · View
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Justin Jilg posted an update: 1 week, 6 days ago · View
@nancytrent Hi Nancy ..pleasure to meet you and welcome to the site. If you have any questions about navigating, please don’t hesitate to ask…One quick suggestion, the best way to interact with the other members is to simply to go to the members tab and add some friends that you think you would like to interact with.
It is important to remember that this site is much more of a pull site rather than a push one so if you have any questions, thoughts, comments, etc…Just shoot them out to your friends and I think you’ll be surprised just how many of us want to interact.
Thanks,
Justin
Justin Jilg posted an update: 3 weeks ago · View
@garybender Thank you so much for everything.
Justin Jilg wrote a new blog post: Time goes by so fast … Thank you so much Alex and Alex’s Mom! 3 weeks ago · View
Running this site is really hard. Keeping the servers online, paying the bills, dealing with the incessant spam and of course reconciling the time spent with my own life … My wife and three children and my very demanding job are very rewarding but are also time consuming. But the most difficult thing to do when [...]
Justin Jilg posted a new activity comment: 2 months ago · View
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