Justin Jilg

(@admin) ?
active 19 hours, 47 minutes ago
Hello, A few Downsyndrome.com members have sent me messages lately about suspicious emails and personal messages they are receiving from a Downsyndrome.com account. Unfortunately the internet can be a place for good but it is also a feeding ground for people that try to take advantage of others. Just as I’m sure you have received the […] View
Full Name

Justin Jilg
My Hometown

Phoenix Arizona
Country

United States
About me in a nutshell

Hello. My name is Justin and I would like to welcome you to DownSyndrome.com. DownSyndrome.com is a website that has the intention of bringing people together to learn, communicate, and impart knowledge about Down Syndrome.

I have never embarked on creating a personal website before. I certainly didn’t have aspirations to create a site so ambitious as this one but something happened to me on February 21st, 2005 that changed me forever and made the idea of not creating this site not an option.

On that day my wife Rebecca gave birth to our first son who we named Theodore Patrick (Teddy). Teddy has Down Syndrome and because of that little extra bit of genetic matter in his 21st chromosome, our view of the World has changed forever. Just like any parent of any typical child, we have taken on the goal as Teddy’s parents of making his experiences fulfilling and rewarding and his community more accommodating.

As of the time of this post, I am 35 years old and I work for a successful Internet company. Because of my proximity to technology, I am lucky to have a perspective on the amazing things that can be accomplished online; especially how it is possible to communicate effectively with people all over the World. It is because of that proximity and knowledge of the power of the Internet that I felt compelled to work on this site and use my expertise to help facilitate the dissemination of important information, research, and the experiences of a global community to anyone that is interested in the issues relating to Down Syndrome.

I very much welcome you to participate in this community. Please feel free to contribute your personal experiences, photos, stories, etc and help me make this a rich environment.
Why am I here

I want to make friends and learn

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Recent Networkwide Posts

  • Joyce Page wrote a new post, My Challenge , on the site Becky's Next Page 1 week, 2 days ago

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    There was a book called Differences in Common written by a mom of an adult with DS that I read in 1991 when Becky was still a toddler (now she is 22).  One of the short stories was called “Why Me?”.  At the […]

  • Joyce Page wrote a new post, Congratulations Becky!, on the site Becky's Next Page 2 weeks, 1 day ago

    ThumbnailTX Health and Human Services Commission has invited Rebecca Page of Alpine, TX to participate in the Consumer Direction Workgroup for a three-year term.  The workgroup is composed of consumers, advocates, […]

  • Joyce Page wrote a new post, The Texan, on the site Becky's Next Page 3 weeks, 2 days ago

    ThumbnailWe have moved to Alpine, TX… almost to the end of the known world… and away from our Amazing Amigos… :(

    Becky is actually taking it in stride!  She is proud of her new status as a Texan!  She takes […]

  • Justin Jilg wrote a new post, What is Down Syndrome?, on the site DownSyndrome.com 1 month, 3 weeks ago

    The human body is made of cells. All cells contain a center, called a nucleus, in which genes are stored. Genes, which carry the codes responsible for all our inherited characteristics, are grouped along […]

  • Justin Jilg wrote a new post, My son is SMART, on the site DownSyndrome.com 1 month, 4 weeks ago

    ThumbnailRaising a child with Down syndrome is a unique experience. The way they learn is unpredictable and children progress at their own pace. Kids with Down syndrome have abilities that are all over the map. Some will […]