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active 1 week, 6 days ago
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ank is my 16month old son with ds

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india

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ankchan

ankchan's Activity

  • ankchan wrote on briannca22’s wire:   2 weeks, 3 days ago

    Hi i have a 19 month old son with ds…

  • ankchan wrote on Justin Jilg’s wire:   2 weeks, 5 days ago

    hi justin…

    i have a happy thing to share with you..my son is walking a few steps indepentently…he is 19 month old now…its because of you only i could interact with many parents and got many tips to raise my son…thank you justin and thank god…

  • ankchan wrote on Sara’s wire:   2 weeks, 5 days ago

    HI sara….

    my son started making 4 to 5 steps indepentently..

  • ankchan wrote on dipro mandal’s wire:   3 months ago

    hai how is dipro doing?

  • ankchan wrote on Laura Suer’s wire:   3 months, 2 weeks ago

    hi laura…

    what you told is correct….but i can’t wait too much…that is why i am asking everybody…but he improved a lot…he is walking by pulling furnitures…i don’t know how far is from independent walking and speaks some words….my kisses to ur little…

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Viewing post 1 to 5 (42 total posts)  
  • God is good, you are going to see so much progress fro now on

  • I don’t remember how long after Donna started pulling up on furniture that she started to walk. It was a major turning point however. Like with any child, she started by pulling up to a standing positions on the furniture. Next she started cruising along by holding onto the furniture. I guess the next big step was when she would take an independent step between one piece of furniture to the next. You could try placing two pieces of furniture or two sturdy tall toys relatively close to eachother. For a while my daughter used a rolling walker, provided by the physical therapist to give her a little support to help her get around. The therapist also used a treadmill and a harness in school. There have been studies that show treadmill training improves the gait of children with DS. However, we never did this ourselves. Only the therapist used the treadmill in the school. (It involved using a harness and supervising her very carefully because she could fall, etc. Now she is walking all over the place, but it really did seem like she never would at times. I remember the therapists used to assure me that she would, but I was convinced Donna would be their first case that would never ever walk. I feel that way now in regard to her talking, but I am trying to be patient. Not one word yet. At school she points to some pictures to communicate her needs. (Frankly I am amazed she is even able to do this.) I was worried that she would become too dependent on the picture system and never want to talk, but they assure me that will not happen. They say they have to give her some way to communicate before the actual speech comes in so that she can make that connection. She knows a few signs, but they feel she gets distracted by the signing and does better with the picture (PECS) sysytem. I completely understand how hard it is for you to wait for your little one to pass these milestones. Hang in there.

  • That is great ! I am happy to hear that he has come along. He will much more as time goes by. Se’anna started walking at 18 month and she is 2 1/2 and she still walks like she learned yesturday. she still falls and walks a little funny, put i am greatfull that she is walking. Again i am really happy that Ank has coming along. all in do time………………….. Nice hearing from you guys…………

  • Hi! I noticed some of your posts about walking, etc on other wires. It can be sooooo frustrating to wait for these milestones. My daughter only started to walk iondependently at 3,5 years old. She is still not talking, but they are working on it. Even though all the docs and therapists try to reassure you along the way that it will just take longer to achieve the milestones, it still makes one anxious to wait it out. Take it one day at a time. I thought my daughter would NEVER walk and now I can barely keep up with her. I am having that same feeling about the talking, but was pleasantly surprised by her use of a communication board at school. All I can say is, hang in there and be patient and follow the therapists suggestions as best you can.

  • She was a little late sitting up by herself because she had open heart surgery at 7 months old. When we brought her home from that, she was like a little baby all over again. I’d say she sat up all by herself at around10 months old and crawled shortly after. She does crawl very quickly now – we will definitely have our hands full when she’s walking!