1 year, 1 month ago
Heather
(@hnbyrum) ?active 1 year, 4 months ago
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1 year, 4 months ago
Heather
thanks Nicole. I appreciate the prayers and you taking the time to reply. Lord bless you and your family. <3
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1 year, 4 months ago
Heather
Thanks to those that have been praying for us, as we lost our baby girl Hannah last week (6 weeks old). We just ask for continued prayer, as this has been a very difficult time for us in our lives.
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So sorry for your loss. I will continue to pray for you during your time of need and may you find strength from those around you with love and support.
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thanks Nicole. I appreciate the prayers and you taking the time to reply. Lord bless you and your family. <3
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1 year, 4 months ago
Heather
we lost our little Hannah baby this Tuesday night. We’d appreciate your prayers, thanks.
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Oh Heather, I am so sorry to hear you sad news. You don’t know me, but if you ever need to talk, please get in touch. You can email penny@dhg.org.uk or call me at Down’s Heart Group on 0844 288 4800.
I know what it is like to lose your little one as my son Daniel died at 14 weeks, it was 21 years ago but I still remember like it was…[Read more]
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My deepest condolences. If you need anything, don’t hesitate to ask.
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1 year, 5 months ago
Heather
How old is your little one? Mine is 4 weeks old today.
One benefit to her having DS, is she is a super sleepy-head, so I am actually getting some rest…plus, the first few years are such a huge blessing with kids, they are so sweet and precious when they are young. It seems like we get more of those years as a result than with a “typical”…[Read more] -
1 year, 5 months ago
Heather
you know, after studying and also reading some people’s blogs, there are some HUGE benefits to having DS kids…they don’t grow up too fast on you like “typical” kids do. The first years are really the most precious years, and somehow we are blessed enough to be afforded a longer “visit” in those years. I’m thankful for that! So yours is…[Read more]
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1 year, 5 months ago
Heather
one thing about having a newborn with DS, is you actually get some sleep at night! My little Hannah is a sleepy head, which was a relief and huge contrast from my experience with my first child.
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I totally agree! My Jenny slept so much as a baby it scared me. After two boys with bipolar disorder who were always extremely fussy as babies, it was a joy and relief to have her come along! Enjoy it!
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1 year, 5 months ago
Heather
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Thanks so much for the friendship request. I look forward to getting to know all about you and Hannah. I too didn’t know my daughter would have DS. Waiting for the results of those chromosomal studies was agonizing! I remember those first few days of learning about DS all so well. Now my daughter Donna Marie is 5 years old and will be…[Read more]
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you know, after studying and also reading some people’s blogs, there are some HUGE benefits to having DS kids…they don’t grow up too fast on you like “typical” kids do. The first years are really the most precious years, and somehow we are blessed enough to be afforded a longer “visit” in those years. I’m thankful for that! So yours is…[Read more]
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Yes, you are right about the rate that the kids with DS grow up at in comparison to other kids. In some ways it is a blessing and in some ways I worry what will happen when Donna Marie no longer has us etc. I suppose all children pose different challenges. I am still getting away with using a crib! She has stopped trying to escape. My son is…[Read more]
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*Hannah….not Hannay. (Typo…oops)
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1 year, 5 months ago
Heather
Hannah has the hick ups….again! Poor baby gets them ALL THE TIME! LOL
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1 year, 5 months ago
Heather
Thanks, I look forward to learning from others. Thanks for your support and friendship.
IT’s nice to know there are other people that are experiencing the same things that we are. -
1 year, 5 months ago
Heather
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1 year, 5 months ago
Heather
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1 year, 5 months ago
Heather
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Welcome to the website Heather, I went thru the same thing u have, didn’t know Gabby had DS til she was born. They are a lot of people that is helpful and nice on here. Hope to see pics of ur little girl. God Bless.
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Hello Heather. I just became a registered member to this website and am reading everyone’s post. Like yourself and Andrea, we didn’t know either that we were expecting a son with DS. Nonetheless, I am looking forward to getting to know more parents who are confronted with the same situation and am looking forward to learning tons from it
Diana-
How old is your little one? Mine is 4 weeks old today.
One benefit to her having DS, is she is a super sleepy-head, so I am actually getting some rest…plus, the first few years are such a huge blessing with kids, they are so sweet and precious when they are young. It seems like we get more of those years as a result than with a “typical”…[Read more]-
Our son is now just about 4.5 months ‘young’
I agree that he loves to sleep. In the beginning, our doc told us to wake him up twice a night for feedings. Well, I cheated and woke him up only ones He’s in the 75% tile for height and weight, so I wasn’t really too concerned We have 3 other children. 12, 10, and 3. We really…[Read more]
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Thanks, I look forward to learning from others. Thanks for your support and friendship.
IT’s nice to know there are other people that are experiencing the same things that we are.
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1 year, 5 months ago
Heather
totally new to this. had a baby 3 weeks ago and was told by our midwife that she has DS…shocking news! So…now I’m here poking around.
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1 year, 5 months ago
Heather
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