Hello everyone, my little princess is turning 1 next week and I’m so excited I can hardly contain myself! I was about 30 weeks when I found out Lexi had DS-and they found it quite by accident during an ultrasound for my having Rh antibodies,during this they saw her heart defect and did amnio. I was not at all disturbed or worried about the DS but was rather frantic about the surgery she would be having.At 3 months we took her to Stollery Childrens Hospital in Edmonton and the surgery went SO smooth she was out in 7 days, at a follow up apt her cardiologist sais she doesnt remember the last time she saw a repair done so well!:) We still have some issues with hearing but are waiting on more testing,in the meantime I am trying to learn baby sign as even though she can hear I feel it would be good to communicate as it could be years before she talks.I do have a question regarding physio. I got a call saying they were sending Lexi ”hip-huggers” to help keep her legs togerther-has anyone ever heard of this? is it necessary? I dont think Lex is any more ’flexable’ than normal for ds and I just dont want to do anything unnecessary. We live in a very small town,her therapists come from out of town (a not much larger town) and there is not much knowledge on ds around here.Her doc. in town didnt even know there was a seperate growth chart for ds children,so I thought I would the experts-YOU-.no one knows more than a mom/dad with experiance!:)
This seems to be a great group and I’m glad I found it.