D

took my daughter to the doctors on friday dec 4th she is now 9 months old an weighs 15 lbs even an 25 ’’ long —–yesterday was the 1st time ever that her doctor has told us my daughter has mosaic down syndrome — part of her is effected by the down syndrome an part of her effected by the turner syndrome.—- although i dont fully understand what that means.

so what exactly is mosaic down syndrome ?

just wanted to wish everyone a happy thanksgiving hope everyone enjoys time with family an friends — unfortuntally the kids an i are staying home this year — i dont wanna put up with peoples bs .. alot of hurtful remarks have been made to me about my sweet baby girl an i just feel she dont need family being rude to her .

sorry ive been away for so long there has been so much going on . my little lady is doing very well shell be 9 months old on the 1st of dec an she is such an angel she is doing everything you can think of she loves eating all her baby foods from a spoon shes also eating alot of reguler foods that arent baby food, we are working on the sippy cup, she says momma , dad dad an ba ba an bu bu (for bubby) an ya ya for mamal , shell shake her head yes or no when she does or doesnt want something an lets see she rolls all over the floors an shes getting up on her knees an rocking back an forth i think ill have a crawler by christmas maybe, when i hold her in my lap shell pull herself to a standing an stand there for a while before falling back down on her butt.shell sit unsupported by herself for a while if you place her in that position before she throws herself backwords — shes doing remarkably well – her ot pt an speech peeple have made lots of remarks to me that they dont think she really has ds but i dunno i was told after she was born that she does — we go in feb to akron childrens for a full evaluation on her then shell be a yr old in march. sorry if all this is scrambled to gether im kinda in a hurry got kids to get out of school an working on preparing things for tomorrow thanksgiving.

sorry ive been away so long ive been really busy – baby girl is doing really great she is growing like a weed. i cant believe she is already 5 months old (just turned 20 wks old) she is the love of my life all my fears of everything haven to do with ds has disappeared – to me baby girl acts like a normal baby an you cant really tell at all that she has ds none of my friends or family know unless i have mentioned it to them. shes been moven up the scale in weight the last time i had her weighed was when she was 15.5 wks an she was 10.5 lbs(birth weight was 6lbs 6oz) she is was 22 inches @15.5 wks (birth she was 18.5 inches) im really short myself if shes ends up short like im told then im ok with that im only 4ft11 her dad on the other hand is a little over 6ft .im a little behind in getting her 4month check up done she goes july 31 im so eager to know how much she weighs an how much she has grown. we havent had any medical problems yet with anything that we know of she still hasnt seen a heart doctor she was suppose to see one back in may the same one my son sees but the heart doctor himself has been in the hospital so dont know when we will get the echo done, shes been eating baby food off a spoon sence she was 3 months old i know a little early but my doctor said he didnt care when we started her on food – shes eats everything almost she loves her rice cereal dha in it, she eats almost all fruits but pears, an she loves her veggies, i still do baby yoga with her at least once a day or maybe a few times a week. she went for her first speech an ot class threw our local mrdd school (special needs school) on july 14th an i was told shes doing great that shes doing everything at a normal 5 month old baby range an she wasnt even 5 months old yet so that makes me very happy. shes already getting the army crawl as i put it down pretty fast,shes been rolling sence she was 2 months old, over all shes a very happy baby she loves her swing, starting to love her exercauser an her jumparoo.im working with her on sitting up which she has been trying to do on her own for a little while now – i do have high hopes for her an i spend a lot of time working with her . she gives me the most beautiful smiles everyday an she loves her mommy an prefers her mommy over anyone.we are still struggling to find a doctor we really like to take care of baby girl . baby girl is so spoiled she has all the toys , clothes ,food an love she will ever need . i no longer think of my baby girls ds i lover her more than words can say. ~~~again sorry ive been gone so long~~~~

hi d,

my son is 11 n half month old with ds..now he is rtolling over …moving forward quickly everywhere and sitting only a few seconds…so far nothing wrong,heart,eye,ear etc…some facial markers r there…he started his home therapy by 7 months and now he is going in a support group…there they r doing physio therapy,occupational therapy n sppeech therapy going to start on next week…i didn’t start going for group…once hestarted sitting then only i am planning to go