Great story Niamh…it always seems to work that way, initial worry and concern, followed later by a thrilling life of enjoyment! I know where you came from, my daughter was a 1 in 4,600 chance of having Down syndrome, yet here I am. The support is so crucial so for anyone out there I’d like to add to Niamh’s thoughts by saying GO GET that…[Read more]

do you guys go through early on ?? that sounds like a really good question for the ocupational therapist.. they have answered so many questions about that kind of stuff for me.. although now savannahs just the opisite if i let her feed herself she shuvs handfulls of food in her mouth

although one big thing for her and eating was she would choke really easy because her muscles were too weak.. so just to make sure hes not struggling i would bring it up to the doc and see if they wanna do some kind of test or the early on therapist could come over and watch him eat and tell you whats going on….. good luck

Hello. My name is Kimberly. My son Gabriel was born november 12,2009. I ran across your website last night and I think its great. I think it will be very helpful in helping people understand DS better.

Hello Jen! My name is Leslie and like you, I also have twins, one with & one b/g. Their names are Rudy & Veronica and my “babies” will be 25 in a week. It was almost 3 years before I ever met someone else with twins when they were born (of course there were no computers then!! lol). Life has been an adventure thats for sure. I will post more…[Read more]

IF you tell me what your looking for I’d be glad to talk to you. I myself believe that our children with special needs who have love and support excel. There are lots of books and info out there. She is young but you will be able to see as her mental health grows with her:)

I guess I posted in the wrong area. oops. You are headed into a life time of real love from your child. They are neurtured thru our love and commitment. Your area should have a early on program(check with your school, or DOC) They should start seeing her right away and they can guide you through most of your questions etc. Ask me anything and I…[Read more]

Hi Frank. Like you, we didn’t know our baby had DS until after he was born. Actually he was 3 days old when we found out. My advice is, if you haven’t already, find a pediatrician who is knowledgable about DS. Our pediatician has been great. They should be able to recommend a good developmental school or some place to go for early intervention.…[Read more]

I have a 10 month old with Downs. We were not really expecting it even though my tests returned with high possibilities of Downs. I wish I had known what to expect. Having a heads up you can do some research and find out what difficulties there may be, learn and be prepared for anything. My Khloe was born with a heart defect along with her downs.…[Read more]

I never heard of it being heritarey(SP) But there has been some people told their child will be born with downsyndrome and the test were wrong and the baby was fine. It doesn’t happen everyday but it does happen. I’ll pray for you.

Dear Dani leave it to God. Mean while get all the info.,educations on downs + the complication that comes with it. My daughter is 7 months,
we found out after delivery, we are dealing with the hirshbrungs, which she had surgery,& the 2 holes in the heart asd,vsd. We had few months of stressful along, asthma & chest infection & bowel. Thank God…[Read more]

I have heard of this and it can be common. I was also told not to carry my child off my hips to prevent problems. Have you heard of the SHRINERS program, there is one in MPLS but they are all over and have GREAT Doctors.