Daniel did the commando crawl for a while. He got very fast at it, then he crawled bear style. He skipped crawling on all fours. He started walking at about 2 and a half. Now he is six and runs, jumps, and climbs stairs fairly well.

Great story Niamh…it always seems to work that way, initial worry and concern, followed later by a thrilling life of enjoyment! I know where you came from, my daughter was a 1 in 4,600 chance of having Down syndrome, yet here I am. The support is so crucial so for anyone out there I’d like to add to Niamh’s thoughts by saying GO GET that…[Read more]

do you guys go through early on ?? that sounds like a really good question for the ocupational therapist.. they have answered so many questions about that kind of stuff for me.. although now savannahs just the opisite if i let her feed herself she shuvs handfulls of food in her mouth

although one big thing for her and eating was she would choke really easy because her muscles were too weak.. so just to make sure hes not struggling i would bring it up to the doc and see if they wanna do some kind of test or the early on therapist could come over and watch him eat and tell you whats going on….. good luck

Hello. My name is Kimberly. My son Gabriel was born november 12,2009. I ran across your website last night and I think its great. I think it will be very helpful in helping people understand DS better.

Hi Jen. Like you, I’m still trying to figure everything out. Only its not just this site. I’m not very computer literate so I’m trying to figure out the whole computer and internet thing. Your babies are beautiful. How old are they now?

Hello Jen! My name is Leslie and like you, I also have twins, one with & one b/g. Their names are Rudy & Veronica and my “babies” will be 25 in a week. It was almost 3 years before I ever met someone else with twins when they were born (of course there were no computers then!! lol). Life has been an adventure thats for sure. I will post more…[Read more]

HI there – not Colorado!! We had great services when we lived in IL and NJ is supposed to be good too – but don’t let that make your decision – there are so many opportunities everywhere – support groups, not for profits – growing awareness everywhere

Thank you so much! We were actually looking at Colorado, so that’s good to know.

Hi Kari, I’m just finding this group…have you made any decisions yet? My kids were born in Albuquerque, NM and they had a great early intervention program; but, we moved when they were 2 so not sure of programs after that. Jacksonville, NC is NOT a place with great resources.

I live in Jacksonville Arkansas and so far resources seem pretty good, but my baby is only 19 months old so I’m still trying to learn about everything. But we do have a very good pediatrician who is knowledgeable about DS and a good school. Also my pediatrician told me there are two other schools nearby that are also good.