1 week, 3 days ago
Savina Pernisco
Lily is still working on her word skills. She is now 11! Though she does great with no accidents during the day. She still needs a diaper at night.
Rene Larson
(@rene) ?active 3 years, 3 months ago
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2 months, 3 weeks ago
Nicole
Bryce is turning four this year and fiesty is a good word for him. He is into everything…..almost like his terrible two’s at the age of four. He yells a lot to get his point across. But, I have noticed a few new words making there way into his vocabulary with exciting acceptance. His is excellent at mimicking everything that his older…[Read more]
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2 months, 3 weeks ago
Nicole
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2 months, 3 weeks ago
mysunsyrus
Hello everyone, I have not been on here in a while and have sent some FR out. Syrus will be turning 4 in April. He has been in pre school for a year and a half now. He does not talk yet, he does say mamma and Dada and tries to mimic allot of words.Have tried to start the potty training, but no success yet. Anyone else having any success with their…[Read more]
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Hi there, my son is also going to turn four this year. He has also been in preschool now for a year and a half. He speaks some words and signs some words. But, this year I have noticed him to begin saying a few new words. As for party training I have not started that head on yet. I plan on trying to tackle that hurdle over the summer. Good…[Read more]
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Hi Nicole, thank you for the reply. My son also yells quite a bit to get his point across to..lol He signs very little as we have always been more verbal with him. His diaper changing has always been a breeze no struggles there. Good luck on the training this summer, It is not a daily thing for us yet, but now and then I will take him with me and…[Read more]
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8 months, 1 week ago
Sara
Se’anna starts school on weds, a new school in a new state. I know my baby will do great and she will bring so much joy to everyone around her.
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10 months ago
Janet Stafford
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10 months ago
Janet Stafford
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11 months, 1 week ago
kimberly carter
Everythings going good. Gabriel got his special new shoes and braces a few weeks ago. His physical therapist said she doesn’t foresee him needing them for long though. He can now pull himself up to standing when he’s in his playpen or crib.
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11 months, 1 week ago
Jen McArthur Logan
Hi there… just joined a couple of days ago and still trying to figure out a few aspects of this site.
How does one start a blog here?-
Hi Jen. Like you, I’m still trying to figure everything out. Only its not just this site. I’m not very computer literate so I’m trying to figure out the whole computer and internet thing. Your babies are beautiful. How old are they now?
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Hi Kimberly… I am computer literate and I find it very confusing… so don’t feel bad.
They are 4 months old now (minus 6 weeks developmentally as they were preemies).
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1 year ago
Naghma Naz Hasnain
hello I My son Abdullah is one year old but still have not yet started teething. Does any one have any idea when kids with DS start teething. I am just too concerned about this.
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My son Connor was slow in getting his teeth as well. His twin sister had a mouth full and he was no where close. In retrospect I truly believe there are no “mistakes” and the slow process of teething goes along with giving your son time to develop the proper muscle tone with jaws, tongue, mouth, throat, digestive system etc to be able to…[Read more]
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1 year, 1 month ago
Kari
My husband and I are looking to transfer with his job this summer. We are trying to find the best places in the country for a child with Downs Syndrome and we’re having a hard time finding any information. Our baby girl with D.S. is 3 months old and we have a 3 year old and a 2 year old as well. Suggestions anyone?
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HI there – not Colorado!! We had great services when we lived in IL and NJ is supposed to be good too – but don’t let that make your decision – there are so many opportunities everywhere – support groups, not for profits – growing awareness everywhere
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Thank you so much! We were actually looking at Colorado, so that’s good to know.
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Hi Kari, I’m just finding this group…have you made any decisions yet? My kids were born in Albuquerque, NM and they had a great early intervention program; but, we moved when they were 2 so not sure of programs after that. Jacksonville, NC is NOT a place with great resources.
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I live in Jacksonville Arkansas and so far resources seem pretty good, but my baby is only 19 months old so I’m still trying to learn about everything. But we do have a very good pediatrician who is knowledgeable about DS and a good school. Also my pediatrician told me there are two other schools nearby that are also good.
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1 year, 1 month ago
Kari
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Hi Kari. I’ve been trying to send you a message but there’s some kind of problem. It keeps saying there was an error and it won’t send. Anyway, its very nice to meet you.
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1 year, 1 month ago
Mary
My son Chris is 9 years old and at times he is great and then out of nowhere he starts throwing and hitting. He has hit staff members at school. Has anyone else experienced this ? maybe they can give me a few suggestions. Thank you
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1 year, 2 months ago
Naghma Naz Hasnain
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1 year, 2 months ago
Edward Palmer
is there anyone in NYC that may have some info on middle schools suited for children with Down’s.
Evie is ging to six grade in September and we are looking for a school that will suit her. Don’t want to do the public school. It has not been effective in meeting her needs.-
Hi Edward, how’s your search going? If replies have been anemic – I’ll shoot out an email to the group and see what comes back. thanks for joining.
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1 year, 2 months ago
tanmoy nath
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1 year, 2 months ago
anserjaveed
thanks
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1 year, 2 months ago
anserjaveed
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1 year, 3 months ago
Alyssa L Koruschak
I look forward to getting to know people on here. Thanks for the invite!
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1 year, 3 months ago
Debra
Just joined, wow a fantastic site! Single mom of an 8yr old boy with Down syndrome, parent advocate, and so much more!
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