6 months, 3 weeks ago
Sue
(@sams1mom) ?active 3 months, 3 weeks ago
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7 months, 2 weeks ago
Sue
I am not good at blogging myself, so I just usually “post” messages. Your avatar is a beautiful picture. My daughter (with the extra chromosome) is three and a half. She got a baby brother last November (with just the right number of chromosomes), had open heart surgery in February, and started preschool in April. While I get sad that she…[Read more]
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10 months, 1 week ago
Sue
Samantha’s surgery went off without a hitch. She had the surgery on a Wednesday and we came home that following Saturday. By Sunday you never would have known anything happened to the child. We stayed home for 4+ weeks (out of day care). Her scar is healing SO nicely too. I think that the chest tube scar looks worse than the incision scar,…[Read more]
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11 months ago
Sue
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11 months, 2 weeks ago
Sue
Well, the boy arrived on 11/3/10 and is a boy in every sense of the word. He is perfectly healthy and at three months, needs a big plate of meatloaf and mashed potatoes. As I wrote a while ago, Samantha will be having open heart surgery on 2/23/11. Mom and dad and grandma and friends [...]
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1 year, 7 months ago
Sue
Evening everyone, So we found out a couple months ago that when Samantha turns three, she will be having open heart surgery to fix three ‘minor’ holes in her heart. I am told that it is a routine surgery, in which she is on the easier side of surgery. Gotta say cracking a three year [...]
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1 year, 7 months ago
Sue
Evening all, So we start a new and exciting journey, and await another quite scary one. We are expecting our second child in November. Crazy story to tell – One doctor based soley on my age – 41 – and the fact that we have a wonderful daughter with Downs, says I am having another [...]
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2 years ago
Sue
Sue commented on the blog post Down Syndrome Signs and Symptoms
We have a daughter with Downs who just turned two. In late June 2009, we found out we were pregnant again, and very much looking forward to the journey – what ever the outcome. Well, it wasn’t meant to be, and in August I had a miscarriage. The lemonade out of the [...]
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2 years, 1 month ago
Sue
Sue and norma perez are now friends 2 years, 1 month ago 2 years, 1 month ago 2 years, 1 month ago
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2 years, 2 months ago
Sue
Sue commented on the blog post Down Syndrome Signs and Symptoms
Enjoy the journey of being pregnant!! There is no other journey like it. I became pregnant at 38 and was not large in size at all. I too denied and amnio as I did not want to risk the complications, and we decided to have the baby no matter what. [...]
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2 years, 2 months ago
Sue
Sue wrote on Waseem Ahmed Khwaja’s wire:
I cannot begin to imagine what you are going through. My heartfelt sympathies go out to you and your family. The doctors try to prepare us for the worst, but who wants to think about that when you have this precious life in front of you. These children we are blessed with [...]
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2 years, 2 months ago
Sue
Sue wrote on Elizabeth Bittelmeyer’s wire:
Your daughter is a beautiful little girl! Look at all those teeth! My little girl has more teeth on top (6) than on the bottom (4)…looking to fill in the bottom a little bit. LOL My daughter will be 2 in January, and I am amazed by her every day. God [...]
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2 years, 3 months ago
Sue
Sue wrote on their own wire:
Good evening everyone,
Aside from a runny nose like all the other kids in daycare, all is going well here. Last week we had a little trouble with Samantha waking up crying in the middle of the night – dreaming? teeth? ear ache? growing pains? Not sure what, but she seems to [...] -
2 years, 6 months ago
Sue
Sue wrote on their own wire:
Well, it wasn’t quite meant to be this time, and we will have to wait a little longer for a brother or sister. On Tuesday I went for an ultrasound and there was no heartbeat. Had surgery Wednesday. We will totatlly try again. One egg down, more to go!!
2 years, 6 months ago 2 years, 6 months ago 2 years, 6 months ago
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2 years, 6 months ago
Sue
Sue wrote on their own wire:
Evening everyone,
Samantha went for her follow up hearing test today and passed A-Okay! She even passed a test with headphones on. We go back in 6 months to make sure the tubes are still in. Just a note for anyone getting tubes – when you make the follow-up appointment, make sure you [...] -
2 years, 6 months ago
Sue
Sue and Savina Pernisco are now friends 2 years, 6 months ago 2 years, 6 months ago 2 years, 6 months ago
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2 years, 6 months ago
Sue
Sue and MARIA GASPAR are now friends 2 years, 6 months ago 2 years, 6 months ago 2 years, 6 months ago
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2 years, 6 months ago
Sue
Sue and KIM Boske are now friends 2 years, 6 months ago 2 years, 6 months ago 2 years, 6 months ago
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2 years, 7 months ago
Sue
Amy Garner and Sue are now friends 2 years, 7 months ago 2 years, 7 months ago 2 years, 7 months ago
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2 years, 7 months ago
Sue
Sue wrote on Amy Garner’s wire:
Congratulations on your new addition. My daughter is 16 months old and the biggest joy in my world. We all know the feelings you are feeling now, and please know that the support you need is out there. Get involved with your local chapter of a Birth to Three sort of organization [...]
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Recent Networkwide Posts
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Joyce Page wrote a new post, My Challenge , on the site Becky's Next Page 1 week ago
There was a book called Differences in Common written by a mom of an adult with DS that I read in 1991 when Becky was still a toddler (now she is 22). One of the short stories was called “Why Me?”. At the […]
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Joyce Page wrote a new post, Congratulations Becky!, on the site Becky's Next Page 1 week, 6 days ago
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Joyce Page wrote a new post, The Texan, on the site Becky's Next Page 3 weeks, 1 day ago
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Justin Jilg wrote a new post, What is Down Syndrome?, on the site DownSyndrome.com 1 month, 3 weeks ago
The human body is made of cells. All cells contain a center, called a nucleus, in which genes are stored. Genes, which carry the codes responsible for all our inherited characteristics, are grouped along […]
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Justin Jilg wrote a new post, My son is SMART, on the site DownSyndrome.com 1 month, 3 weeks ago
Raising a child with Down syndrome is a unique experience. The way they learn is unpredictable and children progress at their own pace. Kids with Down syndrome have abilities that are all over the map. Some will […]
