15 Comments »

Calandra Etsitty said:

I find this website very helpfull and it helps me understand my litle brothers conditions alot better..and im making him a myspace page and hes very excited about it=)))
- 3 January 2009 at 12:01 pm
anicholas said:

It’s nice to see there is a place where parents, friends & family can go to share their experiences & most importantly their joy of raising a child with downs. I was blessed with my grandaughter Taela on 8/27/05 and she has added so much joy to my life. To be able to look at life through her eyes has helped me to remember “don’t sweat the small stuff”
- 21 February 2009 at 10:56 pm
mary jeanne said:

My grandson is 3 years old and was born with ds. He is a love and a joy to us. He has a sister 2years old and a brother 9months old. He follows his sister a lot and does everything she does, he is even copying her with some words although he uses sign language alot and gets his point across very easily. He was born very healthy and we are very thankful for that. I only have one question now, he stil does not have any teeth, the only ones he has is all 4 back molars is this normal? Do children with ds get teeth at a later age? I would appreciate any answers from parents or grandparents who know this question. Thank you.
- 23 February 2009 at 2:21 pm
rebecca said:

hi i just found out through my blood test that i am of high risk to be having a baby with ds a friend mentioned typically you are larger in this pregnancy than others (which i am) did any of you find this to be true?
many thanks
rebecca
- 24 February 2009 at 6:24 pm
Justin (author) said:

This is not true. I wish you the best with your pregnancy. If you have any other questions, please come back and we’ll figure them out.
Thanks,
Justin
- 25 February 2009 at 1:51 pm
hanovercody said:

Hello everyone! My name is Cody and I’m a Senior psychology major this year at Hanover College. My Senior Project partner and I are conducting research on Down Syndrome and parents of children with Down Syndrome. We would greatly appreciate your participation. The survey should take no longer than 20 minutes and your responses would help us immensely. Research is also being gathered on parents of chlidren with Fragile-X and Autism, so if you know parents with children with these other diagnoses, please lead them to the survey as well. Only parents are asked to fill out the survey.
The survey can be found at the following link: http://psych.hanover.edu/research/SeniorProjects/2009/coskunpinardavis
Again, my partner and I very much appreciate your participation and your willingness to contribute to research on Down Syndrome.
Cody
- 2 March 2009 at 1:19 pm
brisdad24 said:

These children are by far the most rewarding to have. If anyone tells you different they are liing. Yes they take alot of work,but to watch them overcome the dissability Is absolutely awesome!!!!!!!!!
- 12 March 2009 at 5:20 am
dawnmbli said:

I have to agree with MIchael. these children are a blessing. My son is now 4 and yes it takes alot of work to show him how to do something but when they get it and you see the excitement on there face boy it is so hard to discribe. LIke I said he is a blessing.
- 15 March 2009 at 4:57 pm
Ana said:

Hello.
I am Brazilian, music student, and I am researching about the importance of music exerts in children with down syndrome. I created a blog to debate on this and other subjects relate to down syndrome. I’ll be very grateful if you could make a visit and divulged it!
Thanks!
http://sindromededownsp.blogspot.com
- 31 March 2009 at 5:58 pm
Justin (author) said:

I am so happy you made it to the site. DSC members, I think this would be a great conversation to have…
- 31 March 2009 at 6:57 pm
allentburgh said:

Hello friends! I work for a non-profit organization, and - as a side project - I am assisting one of our major donors who has a passion for Christian ministry to people with Down syndrome. Specifically, this donor is looking for the right organization to invest in. I would love to connect with folks who have knowledge of and/or experiences with organizations helping children or adults with Down syndrome.
The investment interest, I believe, is more geared toward community and assistance moreso than medical research. And also more geared toward Christian organizations, though I think that an impressive enough organization without explicitly Christian ties could interest as well.
Any insights or recommendations would be greatly appreciated!
Thanks much,
Allen Thornburgh
allen_thornburgh@pfm.org
- 29 April 2009 at 11:49 am
sanchezgirl6 said:

I’m glad there is somewhere I can log on to and speak to other parents and grandparents about our beautiful children! I hope I can get some good advice and give it as well. Thanks for being there!
- 4 May 2009 at 10:32 pm
ianmomma said:

I hope that I will be able to help someone or if I need help that there will be someone there for me. My kids are the joys of our family. We are trying to learn sign language for Ian,who shows absolutely no interst in learning to sign at all. He loves music, but shows some signs of having a hearing problem. Anyone that can help or knows anything that can help I will be grateful.
- 23 May 2009 at 10:34 am
Cristina said:

hi , i am doing a project on Down syndrome at school and ur website was very helpful ,thanks.
- 2 June 2009 at 1:17 pm
JamesD said:

Thanks for the useful info. It’s so interesting
- 11 June 2009 at 6:43 am

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